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The Organization
 
Founded

1984

   
Mission

Our mission is to promote public and professional awareness of CRPS and to educate those afflicted with the syndrome, their families, friends, insurance and healthcare providers on the disabling pain it causes. We encourage individuals with CRPS to offer each other emotional support within affiliate groups. Finally, we are committed to raising funds for research into the cause and cure of CRPS.

   
Members

>6,000, (13%, receive free membership)

Join RSDSA Today!

Other Ways to Give

   
Research

RSDSA is committed to encouraging research into the cause and cure of CRPS. Since 1992, RSDSA has funded $1,413,354 in fellowships and grants. During 2009-2010, we funded $168,376 in grants.

Some RSDSA-funded research projects include:

2010 Rachel Tobias Pain Research Young Investigator Award

Final Progress Report: RSDSA and RSDHope Grant

Pilot Study on Safety and Efficacy of Noninvasive Transcranial Stimulation to Relieve Neuropathic Pain in Patients with CRPS
Previous research has revealed that pain in CRPS patients is associated with cortical reorganization, ie, pathological changes in the somatotopic organization and excitability of the motor and somatosensory cortex. As studies in patients with CRPS and other symptoms featuring neuropathic pain have shown that reversal of pathological cortical changes back to normal is accompanied by pain relief, modulation of cortical excitability seems to be a promising therapeutic approach to alleviate neuropathic pain. The purpose of the study is to determine the efficacy of a new noninvasive completely painless technique called transcranial direct current stimulation (tDCS), to alleviate pain and sensory abnormalities in patients with CRPS.

   
Publications

RSDSA Review (Quarterly Newsletter)

In Pain, Out of Work, and Can't Pay the Bills, directory for financially-devastated members

Brochures and other educational materials

Free information packets

   

Educational Initiatives

 

 

Evidenced-based Clinical Practice Guidelines for the Diagnosis, Treatment, and Management of CRPS

Article archive of peer-reviewed medical articles on research, diagnosis and treatment of CRPS

Electronic Alerts

Website

Free information packets

Slide kit for professionals on diagnosis and treatment

RSDSA exhibits at several major medical, health, and benefit insurer conferences.

   
Funding

Contributions, member dues, program fees, special events, and grant support from pharmaceutical and other companies, and private and corporate foundations.

   
Where Do Your Contributions Go?

Program Services: 93%
Administration and Fundraising: 7%
For more details, please see our annual report.

   
Goals
Producing a DVD that will instruct physical and occupational therapists how to restore function in people with CRPS. It will be accredited for continuing education credits.

Continue to produce the quarterly RSDSA Review and the website.

Most importantly, we will continue on our mission to educate the community at large about CRPS through our publications, our website, and increased outreach efforts.
   
Board of Directors

View the Board members here.

   
Scientific Advisory Committee

View the Committee members here.

   
Annual Report

View the 2009 Annual Report here.

   
Affiliations

RSDSA is proud to be affiliated with the following organizations:

National Pain Awareness Campaign

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