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| Founded |
1984
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| Mission |
Our mission is to promote
public and professional awareness of CRPS and to educate
those afflicted with the syndrome, their families, friends,
insurance and healthcare providers on the disabling pain
it causes. We encourage individuals with CRPS to offer
each other emotional support within affiliate groups.
And finally, we are committed to raising funds for research
into the cause and cure of CRPS.
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| Members |
>7,000, (731, or 10%, receive free membership)
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| Research |
$1,161,050 in fellowships and research grants funded
since 1992.
RSDSA is the only national organization that actively
funds more than $75,000 annually for CRPS research.
In 2004-2005, we funded the writing of new evidenced-based
clinical practice guidelines; Treatment of Complex Regional
Pain Syndrome Type I by Nitroglycerine; Changes in CSF
sytokine levels in RSD, and the Development of a rat
model of CRPS 1 based on partial injury to nociceptive
neurons.
For 2005-2006, RSDSA approved 2 research grants: The
Validation of Revised Diagnostic Criteria for CRPS Diagnostic
Criteria for CRPS and Non-invasive Investigation
of Human Brain Mechanisms Associated with the Development
and Treatment of CRPS.
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| Publications |
RSDSA Review (Quarterly Newsletter)
In Pain, Out of Work, and Can't Pay the Bills, directory
for financially-devastated members
Brochures
and other educational materials
Free information packets (2,418 mailed in 2006)
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Educational Initiatives
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Evidenced-based Clinical
Practice Guidelines for the Diagnosis, Treatment, and
Management of CRPS
Article
archive of peer-reviewed medical articles on research,
diagnosis and treatment of CRPS
Electronic Alerts
Website (average visits: 45,740; peak: 58,199 in January
2007)
Free information packets (2,418 mailed in 2006)
Slide
kit for professionals on diagnosis and treatment
RSDSA exhibits at several major medical, health, and
benefit insurer conferences.
(left) Dr. Pierre LeRoy, RSDSA board member, and Jim
Broatch, executive director, at the exhibit booth at
the American Academy of Pain Management's annual meeting.
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| Funding |
Contributions, member dues, program fees,
special events, and grant support from pharmaceutical
and other companies, and private and corporate foundations.
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| Where Do Your Contributions Go? |
Program Services: 93%
Administration and Fundraising: 7%
For more details, please see our annual
report.
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Goals
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- Producing a DVD that will instruct physical and
occupational therapists how to restore function
in people with CRPS. It will be accredited for continuing
education credits.
- Continue to produce the quarterly RSDSA
Review and the website.
- Most importantly, we will continue on our mission
to educate the community at large about CRPS
through our publications, our website, and increased
outreach efforts.
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| Board of Directors |
View the Board members here.
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| Scientific Advisory Committee |
View the Committee members here.
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| Annual Report |
View the 2006 Annual Report here.
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| Affiliations |
RSDSA is proud to be affiliated with the following organizations:
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Updated
April 30, 2008
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