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Founded

1984

 

Mission

Our mission is to promote public and professional awareness of CRPS and to educate those afflicted with the syndrome, their families, friends, insurance and healthcare providers on the disabling pain it causes. We encourage individuals with CRPS to offer each other emotional support within affiliate groups. And finally, we are committed to raising funds for research into the cause and cure of CRPS.

 

Members

>7,000, (731, or 10%, receive free membership)

 

Research

$1,161,050 in fellowships and research grants funded since 1992.

RSDSA is the only national organization that actively funds more than $75,000 annually for CRPS research.

In 2004-2005, we funded the writing of new evidenced-based clinical practice guidelines; Treatment of Complex Regional Pain Syndrome Type I by Nitroglycerine; Changes in CSF sytokine levels in RSD, and the Development of a rat model of CRPS 1 based on partial injury to nociceptive neurons.

For 2005-2006, RSDSA approved 2 research grants: The Validation of Revised Diagnostic Criteria for CRPS Diagnostic Criteria for CRPS and Non-invasive Investigation of Human Brain Mechanisms Associated with the Development and Treatment of CRPS.

 

Publications

RSDSA Review (Quarterly Newsletter)

In Pain, Out of Work, and Can't Pay the Bills, directory for financially-devastated members

Brochures and other educational materials

Free information packets (2,418 mailed in 2006)

 

Educational Initiatives

 

 

Evidenced-based Clinical Practice Guidelines for the Diagnosis, Treatment, and Management of CRPS

Article archive of peer-reviewed medical articles on research, diagnosis and treatment of CRPS

Electronic Alerts

Website (average visits: 45,740; peak: 58,199 in January 2007)

Free information packets (2,418 mailed in 2006)

Slide kit for professionals on diagnosis and treatment

RSDSA exhibits at several major medical, health, and benefit insurer conferences.

Dr LeRoy and Jim Broatch

(left) Dr. Pierre LeRoy, RSDSA board member, and Jim Broatch, executive director, at the exhibit booth at the American Academy of Pain Management's annual meeting.

 

Funding

Contributions, member dues, program fees, special events, and grant support from pharmaceutical and other companies, and private and corporate foundations.

 

Where Do Your Contributions Go?

Program Services: 93%
Administration and Fundraising: 7%
For more details, please see our annual report.

 

Goals
  • Producing a DVD that will instruct physical and occupational therapists how to restore function in people with CRPS. It will be accredited for continuing education credits.

  • Continue to produce the quarterly RSDSA Review and the website.

  • Most importantly, we will continue on our mission to educate the community at large about CRPS through our publications, our website, and increased outreach efforts.

 

Board of Directors

View the Board members here.

 

Scientific Advisory Committee

View the Committee members here.

 

Annual Report

View the 2006 Annual Report here.

 

Affiliations

RSDSA is proud to be affiliated with the following organizations:

National Pain Awareness Campaign

Updated April 30, 2008