| Founded |
1984 |
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| Mission |
Our mission is to promote
public and professional awareness of CRPS and to educate
those afflicted with the syndrome, their families, friends,
insurance and healthcare providers on the disabling pain
it causes. We encourage individuals with CRPS to offer
each other emotional support within affiliate groups.
Finally, we are committed to raising funds for research
into the cause and cure of CRPS.
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| Members |
>6,000, (13%, receive free membership)
Join RSDSA Today!
Other Ways to Give
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| Research |
RSDSA is committed to encouraging research into the cause and cure of CRPS. Since 1992, RSDSA has funded $1,413,354 in fellowships and grants. During 2009-2010, we funded $168,376 in grants.
Some RSDSA-funded research projects include:
2010 Rachel Tobias
Pain Research Young
Investigator Award
Final Progress Report: RSDSA and RSDHope Grant
Pilot Study on Safety and Efficacy of Noninvasive Transcranial Stimulation to Relieve Neuropathic Pain in Patients with CRPS
Previous research has revealed that pain in CRPS patients is associated with cortical reorganization, ie, pathological changes in the somatotopic organization and excitability of the motor and somatosensory cortex. As studies in patients with CRPS and other symptoms featuring neuropathic pain have shown that reversal of pathological cortical changes back to normal is accompanied by pain relief, modulation of cortical excitability seems to be a promising therapeutic approach to alleviate neuropathic pain. The purpose of the study is to determine the efficacy of a new noninvasive completely painless technique called transcranial direct current stimulation (tDCS), to alleviate pain and sensory abnormalities in patients with CRPS. |
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| Publications |
RSDSA Review (Quarterly Newsletter)
In Pain, Out of Work, and Can't Pay the Bills, directory
for financially-devastated members
Brochures and other educational materials
Free information packets |
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Educational Initiatives
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Evidenced-based Clinical
Practice Guidelines for the Diagnosis, Treatment, and
Management of CRPS
Article
archive of peer-reviewed medical articles on research,
diagnosis and treatment of CRPS
Electronic Alerts
Website
Free information packets
Slide
kit for professionals on diagnosis and treatment
RSDSA exhibits at several major medical, health, and
benefit insurer conferences. |
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| Funding |
Contributions, member dues, program fees,
special events, and grant support from pharmaceutical
and other companies, and private and corporate foundations.
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| Where Do Your Contributions Go? |
Program Services: 93%
Administration and Fundraising: 7%
For more details, please see our annual
report.
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Goals
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Producing a DVD that will instruct physical and
occupational therapists how to restore function
in people with CRPS. It will be accredited for continuing
education credits.
Continue to produce the quarterly RSDSA
Review and the website.
Most importantly, we will continue on our mission
to educate the community at large about CRPS
through our publications, our website, and increased
outreach efforts. |
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| Board of Directors |
View the Board members here.
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| Scientific Advisory Committee |
View the Committee members here.
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| Annual Report |
View the 2009 Annual Report here.
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| Affiliations |
RSDSA is proud to be affiliated with the following organizations:
 
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