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The Treatment of Breakthrough Pain (BTP) in People with Complex Regional Pain Syndrome (CRPS)

Appendix III

What reasons have been given to you for refusing narcotic treatment or dose adjustment?

Other: 389 Responses 

Answer

Some dont believe the amount of pain I experience.

LAST MD KEPT SAME DOSE 4 YRS. NEW MD INCREASED. DOING MUCH BETTER LAST 9 MONTHS

n/a. My Dr has been very supportive

I have not had any trouble with any physician and prescribing my medications.

physicians have given to me

n/a

I told my Dr. that i would rather not take narcotics because they upset my stoma

he said it makes me act to slow

My physician has not denied me opiods

Physician very understanding

he is not one to write out meds at a drop of a hat!

trying to manage at a reasonably safe dose

does not apply at this time

He just doesn't prescibe anything stronger than Tylenol #3

i have no problem w/drs

I haven't asked for narcotic treatment

Left it up my PCP to prescribe my pain meds

n/a

concerns re side effects

none

na

Dosing is already very high.

ONLY ALLOWED CERTAIN LIMIT,OR JUST REFUSED AND SCARRED AWAY.MENTAL ABUSE.

he does epidurals to qwell the pain so dosages of opoiads will be effective

do not know why

I've never been refused opioids, even when I wanted them "just in case."

I tried Methadone clinic, had bad reaction, now no more Hydrocodone because of .

work comp will not pay for them

Was not sure that I have CRPS

My dr has not refused

NEVER REFUSED

never wanted them

Im too young to be on such strong medicine

Never experienced this

NONE

She is reluctant to prescribe anything.

all Dr. in my area are afraid of this happening

he's worried that the DEA will say he is given to much and he is worried i will

Physician is concerned about increasing dosage/dependence

He's not that educated in chronic pain.

N/A. I have never requested them, by choice. Too many other health problems.

He would give much higher dose but im afraid of addiction.

reports of death from use

none of the above

n/a

uncertain

my Physician has NO problems in Rx'ing Opiods at any time throughout my care ~

none

She has not told me any reason she keeps uping other medications instead

doesnt want me to take them but prescribes because of complaint

halllucinations/delusions morphine codeine demoral

none

I do not get relief from opioids.

Not refused

My PCP doesn't recognize RSD !

never had a problem getting scripts

n/a

IM NOT LOSSING MY LISENCE!!!!!!!!!!!!!!!

I was the one refusing opiods due to reactions

neurologist wanted lyrica instead of narcotic

Worried about long term effects given that I'm only 19

Have not had this issue

none

none as i still wauit for new dr to discuss with me

have not had this happen yet

so, far, no problems with my doctor

Not an issue for my teen

not applicable

I am already taking a large amount of opioids

NONE

not sure what to prescribe for pain

not sure if the above are opiods?

I have not had any problems

i requested not to have

have three different docters

I have not had any trouble with my PCP

not in Fl (10 yrs), only in MO (2yrs)

Just never wants to perscribe

no reason given.

We have not discussed using them.

There is no problem with my pain management physician prescribing my medications

doesn't think it's a productive long-term treatment

my doc believes in quality of lifeand i have never abused his trust nor his min

didn't believe it was necessary

I have a better pain management now.I ran into this in the beginning.They had ev

Doesn't apply

Not applicable

they just don't care what kind of life I have

Didn't understand the pain. Have a new Doctor that deals in pain

ER hospital doctor

Worried when I'd get used 2 them.What would be available if needed major surgery

addiction

they are highly addictive

I never had problems with my physician

they make me ill

Using Lyrica and Tramadol

*My age has been a problem with DRs I just turned 26 but I was diagnosed @ age 6

I rufuse naarcotic drugs.

NARCOTICS CONTRACT

Don't want to start that kind of treatment yet

Never refused but did have many talks about side effects, addicction, etc.

not sure

NEVER REFUSED

Don't need them

Specific levels are for longterm use

i ALREADY AM ON A HIGH DOSE OF FENTANAL PAIN PATCH

Never been refussed

no problems

wanted to use spine stim

Reluctant to increase Oxycontin first, we tried increasing Lyrica first.

my dr does not refuse

stated Narcs would "kill your Liver"

question doesnt apply

Have reactions to narcotics.

addiction

I have a child and I would rather suffer in silence until she goes to sleep.

i'm currently on opioids

I chose not to take narcotic pain medication so that I can think clearly

no problem

does not apply to me

In the ER doctors have refused to treat my break through pain.

They are being very cautious and don't want me to get too used to the meds

"your on a high dose now"

N/A

allergic to narcotics

I will not take it

never refused

none

Have not been refused

none

I have been able to manage without

none

I haven't been denied

He didn't believe I needed that much.

my dr takrs care of me

intolorable 4 me/my choice to not use them often

never refused

i have been on the same dosage for over 6 years

I have been relunctant to use them.

not refused

N/A

No reason has ever been voiced by the treating Physician for not increasing

wanted to try everything possible before prescribing opioids

I am already on too many of them

na

i refuse those type of meds

I am allergic to so many meds, I am reluctant to try new meds

he does not want me to get hooked on pain killers

Prior to current Dr...my choice would have been choice 3

have not been refused, we continually try nrw drugs in the hopes one works bette

has never happened

no problem

have tried almost everything & had bad reactions/side effects

None

my physician trys to manage my pain and will increase my dosage when he listens

Dr's won't reconize what's wrong say there is no cause in my head

My doctors aren't against prescribing narcotics.

In the beginning, they doubted the severity of pain. Said I was also too young.

Said not effective for Fibromyalgia but later found out it wasn't Fibro but RSD

running out of options in opiod use also

question the need at that time for pain control and the age of my daughter (17)

n/a

has never been an issue

PCP said to talk to pain management doc and he said to talk to PCP doc.

dont know why

I have never been refused my treatment

this took place in an emergency room

not been refused treatment

I refuse to take opiods

not necessary to manage my pain

never prescribed

not happened

On too many medications overall

tried gabapentin first and it worked

I have no problems with my psysicisan prescribing narcotic painkillers

did not work well on me.

My PM doctor is very conservative but does rx opiods.

they were not working

N/A

none

opioids make me vomit-can't tolerate

Not applicable (required to answer)

Doctor hasn't refused to prescribe narcotic treatment

no problems with my doc

n/a

They never proposed this to me

had bad experiences with former patients, wasnt willing to take risks again

pharmacy said it was not time to renew prescription. Might be a day early, they

I don't use narcotics

Physician is worred I'll start taking less then that prescribed amount..

opiods don't control my pain

my Doctor does help me on this. I have not had any problem with this.

I do not want my body addicted

Have not been refused

not in habit of turning his patients2 addicts

they could kill me

i take hydrocodone

never had any as far as i know

I've been offered narcotic meds but I'm not prepared to advance to that stage

na

I take a Darvocet as needed so I sleep a few times a week. Never refused.

can't find or afford dr

Has not occurred

never been refused any pain meds, they actually want me to take more than I do

this has not happened to me

see a nerologist who prescibes them and looks after me. Unlike family doc....

I don't have a problem.

Dr. hasn't changed morphine prescription when it doesn't work well

Dr's. treat me with 0 respect unilaterally.

I am intolerant of most narcotics

the physician has offered, I have refused as the anti-imflam does just as well

I've been blessed to treat RSD with homeopathic modalities and God's Help

dis-believe of the level of pain / RSD CRPS diagnosis

DON'T KNOW,HE HASN'T SAID

drs say its all in your head ,just keep using it it will go away

Pains under control

havent had a problem with this

not refused

n/a

has never happened to me

md did not believe in using opoids for treatment of ANY pain management issue

no reason given

Said insurance would give us problems is upped Actiq to 800 mcg/opana ER 180mg/d

no reason has been given

Never been refused

never happened

my doctor and I have a trusting relationship has not refused any Narcotics.

I refuse to take more medicine

"You shouldn't be having that much pain" before I was diagnosed with CRPS 2

other medication i am on

NOT APPLICABLE

na

Really don't know

not offered

has no problem with giving meds

still working-

unsure to prescribe

n/a

I am not using pain medication

my caseToo involved

never refused yet

none of the above

I HAVE MANY ALLERIGES AND I AM THE ONE WHO REFUSES THE NARCOTICS

Only at the begining of New Dr

I am allergic to all narcodics

Dr. needed to wing me off the painkillers because w/c claim

my Doctor has never refused me

I don't want to take opiods

wasn't refused

He said I'd only continue to get use to the dose as it's increased.

not required at this time

believes opiods less effective than other treatments

I have a sensitivity to medicine.

said i have taken as much of the medicine as i am legally allowed

not applicable

NA

none

side effects. doc said morphine is strongest nothing else to give

Workers comp claims my prescribed opioid requires detox

haven't been denied

I take very little opiods.

Any increase results in loss of conscious

N/A See Answer 7

concerns about blood pressure as i also have idiopathic cardiomyopathy

Told at this point they wouldn't work

NO MY DOCTOR IS GREAT I TRY NOT TO USE LESS THAN MORE .WITH THIS RSD I HAVE PAIN

NONE HAVE REFUSEDME

have no problem getting opioids from Doctor.

never happened

wanted to try other non evasive methods first

if he increases anymore he is worried about what would happen to my liver

she is afraid of addiction and said I'm on all pain meds she can prescribe

N/A

not denied

limited my usage myself since I returned to work

does not apply

wants spinal scord stimulator implant done ASAP

They were not sure of what treatment to use. They sent me to another doctor

never had a problem

pa said i was wanting more narcotics hen i asked for something stronger than ot

not necessary to have opiods

He wouldn't give a reason other than he does not prescribe pain meds

dont know

I have an excellent PM&R physician

I have RSD, and the Doctor who diagnosed it , treats the pain as well.

n/a

Told me to see someone who knows more about CRPS

I have no problem in receiving pain meds when needed, I do not use them daily.

physician states that I am maxed out on dosage

none

prefers Subutex to opoids

My primary doctor is not comfortable with prescribing the medications I need

in the begining doc didn't think that I hurt that much.

I have not been refused

n/a

I will not take narcotics for my pain.

We have not discussed it.

none

no reason

too young

N/A

I'm convinced opiods are not the best medication for my pain

they have not gone that far, just 600mg of Lyrica

im not on that medication

The only one to have a problem is the WCB's (Canada)

Have not been refused

Never Has Happened

in process of finding a doc that is comfortable w/ prescribing

I might OD

Want to extinguish all other possibilities before going that route.

never taken opoids

Your system won't let me finish w/o clicking ?'s 8,9,10 which don't apply to me

highest dose already given

My Dr knows narc not great for CRPS but what else?

no adjustment

I'm worker's comp--it's hard to even talk to the dr.

The owner of the office told the Dr. not too

family members interference

n/a

not refused

he said it was like a plane running out of runway

na

unspecified--I have not been refused, but physicians seem reluctant

I've never been refused; I've always been real sensitive to opioid meds

Don't believe pain

Many have thought I'm too young-I've had CRPS since I was 18

i, personally wanted to try an alternative

No refusals have occurred

N/A no problem getting meds

feels that I take enough meds now & doesn't want to increase anything.

has not happened

May loose effect and drug may not become effective

never been denied

seems to be managing overall pain at current dosage

My Doctor is just always cautious,which is good!

I refuse narcotic treatment

I REFUSE ANY NARCOTICS

AFTER 3WEEKS THEIR IS NO PAIN FROM SURGERY.THAT IS WHEN I WAS SENT TOO PAIN MANA

not been refused

???????????????????????????????

not applicable

n/a

I'm too young, don't want to get you addicted.

I am not being treated by a Pain Clinic,WC saw to it they were cancelled.

My doctor is afraid I'll try suicide.

n/a

no oral med helps with my pain

question my diagnosis

does not apply

My Dr hasn't denied narcotic treatment

MY DR HAS NO PROBLEM ORESCIBING THEM TO ME

never happened

severe rxns to them

not been refused

concern about addiction

never refused

doc wrote 90 a month every month whether i needed it or not

my former knee surgeon sent me to a pain specialist when it became apparant i ha

he didn't refuse - reluctant as I'm in recovery

I developed a severe allergic reaction to opiods and cannot take them.

Allergic

allergic to most

does not refuse

doesn't believe in "break thru" pain and thinks fentanyl kills people

na

I no longer take narcotics

DO NOT USE NARCOTIC PAIN MEDICATIONS

N/A

Physician is not comfortable prescribing opioids, uses alternative therapies

NA because I will not take narcotics

does not apply. refer to question #7

Government regulations

Internal medicine board certified does not feel that she is competent to treat

not applicable

That they are addicting

Does not apply

I use Lortabs

My physician is ok with perscribing opioids

He says he has to be careful because 'they' really monitor the amount of opioids

Just said they were addicting. I too have been afraid to take drugs.

na

I'm also Diabetic and HBP

I am on many medications

I'm on a low dose norco

can't be on them the rest of my life

increasing dosage makes me sick

see response to question 4

Dr. says they don't help with neuropathic pain

no problem

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