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Research
 
Opioid Use in People with Complex Regional Pain Syndrome (CRPS)

Appendix III

6. If an opioid contained an additional abuse-deterrent component, to prevent individuals from using it to "get high", would that deter you from taking that medication for your pain? - Comments

i hate putting any durg in my body..

If I needed the med, I would 1st discuss it c my Dr and pharmacist and check out the PDR and Nuring handbook b4 I would take it

The opioid helps by lifting my mood a bit.  It's not "euphoria", but a slight increase in energy and alertness that works well with the pain control.

Maybe it's just me but I take Dilaudid and Lortab and never feel any kind of "high"
from anything nor want to. I just want relief.

i dont get high from mine so it would'nt make any diff. to me what so ever. if every dr followed the guidlines mine does there would be no abuse

As long as the pain releif was not effected by the addition component.

I might consider it if the opioid would help nerve pain.

Not applicable

again we are in a Grey area between of Anxiety and Hydrosis you must have a little high in it.

As long as a medication is helping with live a life, I will take it.

I have never heard of this but then I have also never gone time from taking
medication appropriately.

Depends on component's affect on me! Rx items, for the most part take their toll on my system, and hinder relief.

I need my pain meds.  As long as they work, I will take them. My pain meds do not get me high. They lower my pain to a tolerable level.

If my pain were that severe, no it wouldn't deter me.

That is one of the effects that most bother me...I then have nausea and vomiting. I
do not wish to take meds potentially causing a "high". Sickens me.

as long as there are no adverse side effects from that component and medication
continued to treat my pain at the same degree as it currently dose.

I use it strictly for pain and am soon will to have to get a morphine pump. Any thing that relieves the pain is fine with me.

I would welcome it

I don't "get high" from my pain medication and I only use it to relieve the pain so it wouldn't matter to me as long as the 'component' was safe.

I JUST WANT PAIN MEDICATION TO HELP REDUCE MY PAIN

increases potential for side effects and adverse reactions

i dont abuse it

I am so NOT interested in getting high!!

As long as it worked.  I've NEVER had a "high" feeling.

The last thing RSD patients need is more chemicals in their meds to deal with.

as long as it worked for the pain

i only take my pain meds when the pain is so bad that I cant walk or get out of bed

However, GET HIGH? hmm.. funny people that need this medication do not get high. I do not and I have been on cocktails of 850mg

Not as long as it does the job of keeping me comfortable

My only concern is that the medication relieves my pain without doing too much
damage to my body in the process. The "high" never bothered me.

it would be better. No worries

I have extreme medication intolerances. My doctors would not prescribe a medication like this because I would not tolerate it.

yes, if it didn't change pain control ability. i do not take my med to get high. take to help pain so i can function. stop being treated like criminal.

We should not be opposed to receiving such a medication. It has to help AND have no extra side effects I would be grateful for it, I have a son.

NOT IF IT STILL WORKED

As long as it still was effective taking care of the pain.

sometimes I wish it made me feel high, if that is what it would take to take the pain away... bring it on!

I really don't like that side effect because it prevents me from taking them during the day while I work or watch my son.

Don't want any additional meds.

I do not believe that most chronic pain patients want to get "high",they want pain relief. Getting rid of pain is different than getting "high".

As long as efftiveness was not interfeared with.

Only if if did not affect it's pain control ability.

I'M NOT TAKING IT TO GET HIGH, I DON'T GET A HIGH FROM WHAT I TAKE SINCE I'VE BEEN ON THEM FOR SO LONG. JUST WANT PAIN RELIEF!

I don't want to use a medication to "get high" I am looking for pain relief.

Not at all.  Patients like us are not using it to get high, but to get some relief from pain and some sort of quality of life to walk and move.

I have been stunned not to feel high since my surgery,but normal...without CRPS
pain issues.

no problem if it doesn't increase side effects or reduce dosage's effect.

all i want to do is have a day being pain free

Pray that it would make the Dr..'s comfortable writing the scripts for them under those circumstances.

no promlem percroibing. have terrible pain.

no comment

I've tried creams that caused rashes, nerve blocks that caused me to choke, and pt that makes me cry;i would use any medicine if it stopped the pain.

As I said to my doc, I don't know how people get high on these meds. They do
nothing for me. Hell, they don't even put a dent in my pain!

Not sure, but could use a higher dose on occasion as you all know those clouds and the weather change sure can land you in bed !!

depends on the deterrent.  Would it produce unpleasant symptoms?  Don't need
more of those.

If the medication works no matter the side effects, it would be my choice & i would act responsibly & take only as directed & needed.

As long as I wasn't allergic to it, or it didn't have any negative effect on the pain
relief.

we are normal staight people. cursed w/rsd. if we want to get high. use marijuana.
the med must relieve STRONG pain. i don't believe many want a high !

I WOULD TELL MY DR.I WILL TRY IT.BUT IF MY PAIN STAYED UNRELIEVED THEN HE WOULD PUT ME ON SOMETHING ELSE.

pain mng. put me on methadone 4 pain. Ins. Co. made me go 2 a methadone clinic cause it's cheaper. i am humiliated walkind in there.

Does it alter the effects of the medication?

As long as it still helped to relieve my pain the exact same.

I have enough problems with medications without adding something else specifically intended to cause problems.

I've never gotten high.  If a patient is getting high, then they are taking more than they need. Come on, tell me is that patient just a junkie?

No, I don't abuse my medications so it wouldn't bother me.

Not sure what this means.  Right now some days my pain levels are over the top.  I am thankful for the medications that I do have.  I dont get "high".

I believe that the suboxone has that in it....

I never get a high off any meds that I have been on for pain control.

Suboxone cannot be abused

I have a hard time taking my medication do to the risk of addiction

As long as it works to decrease pain.

I don't get high from pain meds.I take the meds to make life easyer to make it day by day.

Only if it didn't leave me with more side effects. That is the hard thing, the side
effects, we deal with so many already

I have never gotten high from my opioid meds, nor have i ever looked for a high,
only pain relief, living with CRPS is very difficult due to the pain.

I want relief not a high

It controls my pain. But I personally would not be happy to put another chemical in my body that I personally feel is unnecessary.

I have never gotten high from any of the drugs.

NOIASKEDMYDOCTORABOUTGETTINGHIGHANDWASTOLDIFYOUNEEDITFORPAIN YOU WILLNOT GETHIGHJUSTRELEAFFROMPAIN,IFYOUHAVVERSDYOUWILLDOWHATYOU NEED
TODOTOGETLESSPAIN.

Another med that migh be a drag on liver or overall health

Probably, I don't believe we should pay the price for criminals. I'm not taking any at this time so I don't know how I feel about this.

I've taken many medication that have been said to create a "high" effect.Yet these medication barely have any effect on me.Most dont help my pain.

I never "get high" from the opiod. It doesn't even take away the pain, just reduces it.

As long as my pain go away it fine

I just want medications to help with my pain only.

That's just silly.  I've found that when you really need pain meds, I mean really need it, there is very little "high," only relief!

I do not know. I would need other way to help with pain.

I didn't use it to become high-I needed pain relief

They're not worried about if a patient gets "high" and drives - they're worried about
being prosecuted for prescribing the meds for months - years.

our bodies don't get a high effect from the opioid. Would this additive effect the way the drug works? If it did, then yes I have an issue.

I disapprove of invasive procedures with inconclusive results.

as long as it does not effect the way it works

re do everything. As long as the medications work: WHO CARES. I would take it.

Actually, I do not get an euphoria side-effect from any opiods. My non-narcotic pain meds, such as Soma and Ultram, make me high as a kite.

picked no, as I don't understand the question, can't comprehend it.

If it doesn't impact the effectiveness of the med, absolutely not

I was on Avinza, had surgry, stopped all meds. prior to surgry so that I could
distinguish where my pain orginated.  Dr. stopped Avinza, no w/drwls.

would prefer not to get high and just want pain relief

If it reduced the effectiveness of the medication or caused side effects, I would not take it.

sounds like a good idea

I never took morphine to "get high". I never "felt high" on it. I DO have a morphine pump with 3 different meds, including morphine tho.

Depending on what deterrent was, I don't "get high" I take my prescribed amount
of morphine and percocet I take less because it barely works.

would love to know what else is out there

The opoid i'm on doesn't have the "get high" component to it.

If it did not effectively treat pain & provide some relief like meds without, but
standing fast to an understanding narcs mask pain not eliminate.

My body allows me to go 'cold turkey' on any meds - tramadol and gabapentin
recently.  I feel addiction to be - special chemical in brain or emotional

I DON'T FEEL THAT WE NEED TO HAVE ADDITIONAL COMPONENTS IN OUR MEDS IF WE DON'T NEED IT.  IT STIGMATIZES PAIN PATIENTS

What I am looking for is relief not to get high or woozy. I want to feel and ACT
normal.

I do NOT take these meds to get HIGH at all and I get tired of people thinking that is what opioid use is all about in patients using opioids!!!

Great, one more issue with side effects.  What would be added ?  Maybe give drug screening BEFORE the first opioid prescription is given to screen?

I don't ever take opioids because of the potential negative consequences with RSD.

my pain medication dose hasnt changed in a long time...we have me on an exellent regiment

but, I would be afraid that this extra compnent might cause some reactions or side effects,

As long as it works on my pain.

what I am on works just fine. no need to consider this option. have been on it for
years with no need for increase

With the morphine that I'm taking now is sufficient for my needs.

why make your liver, kidneys try to process more?

I do not get a "high" feeling with medication, unless I am over medicated.  After
initial adjustment period, I would have my meds adjusted.

as long as it is effective against the pain, I don't care about the "high". Because of the side effects, you'ld have to be a fool to take them for fun

Makes no diff to me. Never used it for getting "high". It was and still is the only med that cuts most of the pain w/o side effects so I can function.

since it isn't used to "get high" as you say, I just want it to work for pain.

As long as the medication handled the pain, it would be okay.

I dont need to get high. I need to stop the pain. At least for a little while.

Most drugs that are adulterated just cause awful side effects and compound the
problem such as Nubain and phenergram for migraine.

if the drug helps the pain,i'll do anything to get some relief so i can live some what normal and not stuck in the bad all day from the pain.

I just want something to help me with my pain and to deal with the RSD/CRPS.
I am open to anything that will help with my pain to decrease.

Pain relievers are bad enough...don't need the other stuff so I can have more side effects

as long as the abuse detrrent wasn't dangerous to kidney or liver

I have never gotten high only tired.

Unless this was not safe.

As long as it still works the same and gets rid of my pain.

I was ready to die before i was put on methadone and i do not get a high off of it

I get no euphoria from my drug use--it reduces my pain and that's all.

I TAKE IT FOR MY PAIN, EXCATLY THE WAY MY DR. WANTS ME TOO.

Unless it increased risk (i.e. adding tylenol, like most of the schedule 3 meds).
Additionally, Opioids have never made me "high". They make me sick..

The opioid I take is for treatment of severe chronic pain, and taken as directed does not cause addiction

As long as the efficacy were the same as the unaltered drug, I'd have no problems with it.  I'd check the lit. for same PK/PD, as well.

However, I have never used my opioid meds for the purpose of getting high. I have not abused my meds in any way so this would not be an issue for me.

All the different opioids I have taken and am taking never give me a high.

Do not like the "high" feeling. Would be hesitant as to any side effect's. Percocet
does not give me a "high" feeling. Just lessens pain.

drug addiction is a different problem then being in pain or having seizures which
reguire a PRESCRIBED NON-GENERIC MED WHICH GIVES CONSTANT % OF CONTROL without the ups and downs of inconsistent med levels.  people who want to get a can sniff whipped cream. ok

with all the other problems that people with pain have ..i think the little high they
get once in a while is part of the reason it works..

confusing question-i only take meds to alleviate pain

I would love that

I am not taking them to get stoned, I hate taking pills and being dependent on
anything I hate being tired and out of sorts.

i have never felt or gotten 'high' from any of my meds to include opioids.

Have just been prescribed such a medication - Suboxone.

As long as it did not interfere with the release of the normal dosage of medication.

Actually that would decrease the fear of transporting the drug.With all the theft
going on.As long as the drug would not pose added health risks to me

It is more important to me to be able to live my life instead of living in pain unable to do anything. Even if it means a shorter life.

as long as it still helped with the pain and did not add additional side effects.

depends on what they add to it. if its detrimental or causes side effects, absolutely!

pain relief is the goal not "getting high"

As long as it does not effect the pain control for us that don't abuse it in the first place.

If I want to get high I would smoke pot. It's ok to be addicted to cigarettes though.

It might. It depends on more side effects.Why add another drug to your body?

It's seriously the only thing that helps me.

to be able to function like a normal person no matter the meds/treatment is what
Im searching for

I'm not taking meds to get high, not a concern. Meds barely touch CRPS pain. If it works against the hellishly severe pain of CRPS, then I'd try it.

The only thing I wish is to have a medicine that can actually help with the pain,
but not make me incoherent or unaware of my surroundings.

As long as it helped my pain I would be happy I have been on long enough I get
no mental high anyway

I don't know anything about this!

NOT SURE WHAT YOU MEAN BY THIS MEDICATION

I do not get high from my pain medications so that would not deter me from taking any medication what so ever.  I do not like that feeling at all.

As long as it didn't effect the original use of the drug for treating pain. If it would
decrease what it's suppose to do...control the pain...then yes

not sure, would have to talk to my doctor and see if that component has an effect on it's potency

I have had rsd for almost 6 years. The pain pain/symptoms are getting worse as time goes by. Looking into the Ketamine infusion.

When someone has severly bad pain, you don't get "HIGH"

That needs to be added to all opid medicines

I never have the feeling of "getting high", only comfort from some relief, though
never pain free.

So long as it
1, helped my pain, and
2, caused no ill side effects.
But, I don't want to add anything else to my system that's NOT necessary!

It is me.. I am not a drug seeker, I am a "PAIN" seeker!

Any drug that is Non-habit forming is always better.

You see I take this for pain and I have yet had a or got a high on of what I take.
We are very carefull,I would keep on taking the medicine that

I don't take opioids to get high, so it wouldn't matter if my medication was
"abuse-deterrent"

That would not deter me. I don't experience that euphoric feeling.

i think mine does as a matter of fact

I don't like the way opiods make me feel, but  the pain makes me feel worse.

I would try it and see if it worked for me-you never know.

I would rather have an abuse deterrant and the doctor more ready to prescribe
than to have to worry about patients getting high

It was not the abuse I was concerned about but how it affected my behavior and mood.  It lowered my inhibitions to say things that were inappropriate.

I would deter from any drug with an added deterent ONLY if the drugs ability was
negatively impacted. For ex. loss of potency, or duration it worked.

They never make me high. I am always amazed by people who get 'zonked' with a single tab after dental work, etc. With real pain, high is not am issue.

As long as it help me with my pain I would not care

Recently discovered Suboxone. VA will not prescribe so seeing outside Dr and
paying for scrip

As long as it reduces the pain, I don't much care what else it has in it!  I'd prefer it without the up and down of the high actually.

NOPE!!!! COULD CARE LESS, AS LONG AS I AM NOT IN THIS EXCRUCIATING PAIN, MY DR. SAYS ANYONE CAN BE SLOWLY TAKEN OFF OF ANY MEDICATION IF NEED BE

The drug might not be as affective as it is now.  I am not seeking it to "get high"
only relieve severe burning pain.

I do not feel drugged or high from the Duragesic 100 mcgm patch I wear. I do have to change it every 2 days versus every 3 days to get good coverage.

I am willing to try ANYTHING to help relieve/reduce my pain so that I can function.

I don't take it to "get high"

My pain level is so high that I have never had a high, so I would not be bothered.

An antagonist medicaation does not allow me to increase my dose for breakthrough pain.

I don't know why people use drugs to get high.  I don't get that way only a little
relief from the pain

I actuallly did try subutex for pain, but I have such severe reactions my doctor put me back on my opoids.  I don't get "high" from them.

it would not bother me I have learned to control it more but on the bad days its
bad

I take Vicadin and Percocet only for extremely high pain days and not to get high.

I don't know. I had to use a  fentanyl patch  because my pain was  severe and I
disliked the feeling so much that I  chose to bear more pain instead.

As long as it works.

This doesn't apply to me.

My pain is so severe, I don't "get high" or drowsy.

NOT IF THAT MEDICATION WAS 1 OF THE MANY MEDICINES I NEEDED TO FUNCTION DAILY LIFE AS CRPS WHEELCHAIR BOUND. QUALITY OF LIFE FIRST & FOREMOST!

I have never felt the need to supplement my regular dose of opoids or feet
"high" or "Spacey" while using them.

It would help us and stop us from being called "drug-seekers" at ER's

As long as the medicine continued to work as a pain reliever. I am not on this
medication to get high but to help with the debilitating pain

In fact, I would welcome that so that it would make it ineffective to those that
abuse it on the streets.

i do not get a high or medicated feeling when taking the morphine or oxy, ect i
only want pain control. an interesting paper on placebo's,

I'm currently on enough medications and side effects, and I don't trust the drug
companies to add a truly "safe" deterrent component to my meds.

No, I don't take them to get high. I only take them for severe pain, which seems
to be a lot more recently. I would be happy if it helped people.

As long as it can still help keep my pain bearable.

I've been praying the drug manufacturers would put something to make it safer
so that others can not abuse long lasting pain meds

Life with chronic pain is not a good life.  I take pain medication only when the pain is intollerable.

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