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Opioid Use in People with Complex Regional Pain Syndrome (CRPS)

Appendix IV

7. Do you think your caregivers would feel more comfortable if you were taking an opioid that treated your pain, but also contained an abuse-deterrent component that prevented you from experiencing any additional analgesic effects, like euphoria? – Comments

i never felt euphoria on any drug..i feel sick and i still have alot of pain

I am a very responsible person and my Dr's and everyone know I avoid taking pain pills if possible--sometimes to my detriment

I have never had a problem with any caregiver regarding my opiod medication. 
Perhaps I am just lucky I have such caring and understanding caregivers.

As long as it was still as effective in providing relief from pain.

i think that would depend on what stage you were in and other factors, if the pain is so unbarable who cares aout a little euphoria.comfort is the key

I don't experience any euphoria type effect but I believe it would make my physicians feel better.

going back to the anxiety factor you have to be a little high to stop the sweating

My caregiver knows this isn't an issue for me.

My current Dr. would find this irrelevant. if he leaves or dies, as long as it helps the
pain I don't care what they put in it.

N/A

my euphoria seems exhausted!!!!!

the medical community that I am stuck with do not care if I am in pain and are doing everything they can to prevent me from improving.

Maybe

Encouragement from family haunts me. Need a med to stimulate natural endorphins without side effects (nausea/vomiting) to allow functioning at work.

why punish us for actions of a few stupid people. They abuse, they should assume all risk of that abuse. Be accountable for their own actions

My behavior is not an issue. I have known him for a couple of years but he doesn't need trouble from the Feds so whatever is best for him is good.

everyone would be happy since they worry about addiction

I would say yes NOW because I think alot of doctors are terrified of opiods and the potential for reprocussions from all corners. This is a problem!

large drugtrafficking here, i am consideed a "druggie" by PLymouth pa police refused assistance when beaten by husband

Has never been a problem. If addiction was ever an issue for me, I would cetainly notify my doctor immediately. Euphoria isn't a side effect for me.

caregiver is knowledgeable and intelligent -- would be more uncomfortable with
increased risk of adverse reactions

it doesnt matter

don't have a caregiver

I think no because I don't take the medicine if I don't need it.

the is bad and if it works its great but i only take it when i cant walk or get out of bed

Again, I do not get "High" I find this almost. laughable.

Im not sure how to answer that as I do not get "high" from the dose I take and
I have never had the urge to take more than the Dr perscribes

They feel as do I, the "high" is not the worst side effect; we are more concerned with other effects on the body caused by using opiates.

I would be more comfortable, I hate the effects. I need a clear head at all times.

I don't enjoy getting 'high' on my medications. In fact, I avoid taking my opiate
because of this side effect.

have been led to believe opiates are bad always lead to addiction. there is risk,
anything that would deter that chance, would be a plus for all.

They don't care as long as I get relief.

My daughter seen what happens when I moved down with her with no meds.
Withdrawals were bad and I had no Doctor or insurance.

I do not know, but suspect that MOST doctors would be more comfortable as it
would protect THEM if anyone abused the drug.

I have been on opioids for several years. If your body needs the drug to servive
you have way less chance of addiction.

My doctor has stated he has no concerns about me abusing any meds.

Undecided. This has not been an issue to date.

an abuse deterent is yet another chemical going into our under-fit bodies. The last thing that we need.

Not with me specifically because they know it's used properly.

opioid use has NOT been a problem.

Hardheaded....

i don't know. it has not come up.

When you are in pain what the hell is wrong with euphoria?

Probably since they're all worried about lawsuits. What euphoria? What high? I've heard about it, read about it. My meds do not affect me mentally.

Yes and no, I don't experience any euphoria symptoms at all, never have. Patients w/true pain don't want to get "high" we just want the pain gone.

Addiction is not something my family worries about, they can "see" the amount of pain I am in by looking at me!

I take my meds as prescribed by my doctor, I never get a "high" feeling from my
pain meds.

Please note I am English and things are very different here!!!!!

BEING IN 11 YEARS OF CHRONIC PAIN OF RSD/CRPS AND PERIPHAL NEUROPATHY/
BONE PAIN OF SPONDYLOSIS I DONT GET EUPHORIA.I JUST GET RELIEF.

Although I cannot speak for my doctor. I now have a pain management doctor who will not allow me to suffer from my RSD more than I have too.

I use so little of the opiod, prescrip. was filled in Dec. 2007, 30 pills, still have 20 left as of OCT. 2008.

My physicians are aware of my problems and would be reluctant to prescribe pain medications that that have additives.

They trust me because I don't abuse.  I'm an adult and treated like one.

My husband doesn't worry about me as he knows I don't abuse my medications.

I dont get euphoria ... I get relief big difference.  RSD pain is unreal and I dont think I could make it without the medications I do have.

I need the medication, my caregivers just want me to be comfortable

The doctor I am seeing right -I fired her a few years back because she wouldn't let me stop taking all the meds she had me on-she threatened me

I'm not sure if that plays into my personal treatment. But definately when I start with a New Doctor. Then its a nitemare

Mine does and he still dosen't like to give out scripts.

Docs at CC had a stroke whenI arrived on 48mg of Dialauded/day IV. They
immediately cut it by half and continued to do so reguardless of effectiveness

No problem getting them

I rarely have an intense euphoric experience as I am used to the meds.The answer is still yes to this question. I do not drive anymore due to the meds

I tell my doc any problems that any pain meds give me. IE.. adjust my dose.

Not really sure. It bothers me because i have never felt euphoria from the opioids and i take high doses. If truly in pain how can one feel euphoria?

this doctor likes to use blocks a lot to control pain

just want me to have pain relief

I am unsure of this response.  I do not experience any type of euphoria as a result of the use of my opioid medications.

I believe my current medications are working.

I really don't have caregivers.  I am a strong woman and do what I need to do.

IFTHECAREGIVERCAREDTHEYWOULDWANTYOUOUTOFPAINPEROIDPEOPLEWITH
CHRONICUNDERSTANDWHATITISBEINGINPAIN24-7 THEONESNOTINSOMUCHPAINDO
NOTUNDERSTANDCHRONISPAIN

Have never had any kind of"happy"reacton

Doctor are scared to perscribe these neccessary medications because of public
beliefs concerning opiods for a disease they dont understand.

i am my caregiver

Might help overcome the long standing stigma about narcotics.  It is improving,
especially with new legislation, retirement of the "old-guard" etc.

My family wants me to get relief, they know these drugs have no euphoric effect on me and just relieve my pain.

I know of pain patients who should have this

I would imagine that it would be fine. I feel no euphoria. All I feel is pain.

my husband would love for me to have something to ease the pain but he is
concerned about addiction to any medication

They're worried about prosecution for "addicting" the CPRS/RSD patients to drugs - they DON'T UNDERSTAND the pain.

Who has euphoria? I just have enough relief to get through the day to day stuff. I have never felt a Euphoria on my medication. I can function daily

The only person who knows what I truly take, is my husband. It is no one else's
business what is in my lock box.

I don't think it would mateer to them.

Not sure, as i can't get the MD's here (02 crushing inj that lead to RSD happened to me in a MD's office), to cur presc me any.

They trust that I only take opiods when I am incapacitated by pain and have no
other options

As my dosage is low, I don't get the euphoric effects.  The pain control only takes the edge off.

My caregivers want my pain to stop or calm down.  I tell my cg when I take my meds. I tell them what to expect, me being hyper or sleep on/off.

That would be an added benefit, sure. But the end result is what's most important; less pain or non at all.

I think that might help but on the same hand my age works aginst me. Even though I have RSD pain for over 20years and other treatments have not worked

i have no caregivers, but my boyfriend worries about it.

Only because they feel they need to protect themselves from prosecution.

My physicians know that Morphine does not create Euphoria for me. It is merely as a pain reliever.I have no additional analgesic effects.

I suppose it would be safer, less the fear of having meds stolen and such. But as long as the meds work as they do now, I see no problem.

i would since this patient is my 14 yr old

caregivers do not like opioids period. the rest of my family is so dead set against them as well...

my family was not so concerned about addiction but the change in my personality for
the worse- sleeping all the time,nottaking care of myself,etc.

I think he would feel better if I couldn't OD on opiods. I would only take extra when the pain was so intense that nothing would help.

They just don't want to prescribe

Would feel more uncomfortable...because of previous dependencies and previous complications with my bronchi.

My husband is a recovering alcoholic so used to worry about me. I do not abuse
meds, but would be more comfortable with an abuse-deterrent component.

Caregivers need to strike a balance that leans more toward patient health,
understanding that untreated pain can cause much more damage than treated.

my caregivers know that Im have no 'abuse', addictive tendencies and are in the habit of having to remind me to take my tablets as I tend to forget.

I don't think it matters to them . They just want me to be comfortable and happy. They, of course don't want me addicted, but I believe I already am.

I don't get euphoria but I do get extremely tired and spend a lot of time sleeping.

My husband says he wants me to feel normal, not droswy, spacey, and unable to be left alone for lengths of time.

I think this is on an individual basis!

I have NEVER felt high from my fentanyl patch or Ultram. I expect if properly
screened patients get the right dose, this wouldn't be a problem.

I don't ever take opioids because of the potential negative consequences with RSD.

I think a caregiver relys on their relationship and the trust level as a factor.

My Drs know that I need the medicine and wouldn't think of abusing any meds

does not apply

I don't think that my caretakers are too worried about me abusing the meds

I do not have a caregiver yet.  It is not the caregiver experiencing the pain.

N/A for my situation

It has not been a concern for us.

I have never had euphoria or any other analgesic effect from the opioid medications
I take. My caregivers want whatever I need to bring down my pain.

My family understands the pain and they don't think I do/will abuse them for
recreational purposes. Besides they DON'T cause euphoria for me.

No. They know me I never abuse anything. I do understand it's danger to others, so it will benefit them and make it more available to people like me.

the important issue is whether something works for my pain, not if I'd take it to get euphoria.

I do not know I will not take anything that can be addictive.

I think pain management centers are very concerned about overdose,addiction and misuse of narcotics.

I really do not know. I do not even think my family understands this RSD. I deal with this on my on. Every day since I got it in 2003.

I can't get enough pain med to barely take the edge off the pain let alone get "high" with it!

I don't and never have experienced euphoria with my narcotic, fentanyl.  i wear a duragesic patch and have Actiq lozenges for breakthrough pain.

I think anything that would get the government off their backs would be wellcomed.
I think it is a shame pain Doctors are monitored anyway.

Right now my caregivers understand my need for opiolds to deal with my pain. They know I take it stricktly for pain and not to get high etc.

I won't take opiods at work so I won't be accused of being 'drugged' I use the
clonidine instead.

They no that's no a problem for be and do believe me when I am in pain. I have
never experienced euphoria, I do get tired.

They know I only get analgesic effects.  I don't think I've experienced additional
effects other than pain relief.  No euphoria for me:(.

most dr's are afraid

I believe my caregivers know I am not addiction prone and they would provide the best treatment that provides some relief with the minimum risk.

Taken as directed does not cause addiction, especially in treatment of severe chronic pain

don't understand

I haven't yet met a doc who didn't have some degree of opiophobia.

Every dr would want a pain med that relieved pain but had minimal side effects w/ our quality of life. Meds cause other health problems with CRPS'ers.

I don't think they care as long as I'm not suffering a lot.

I don't think so because I never get any type of euphoric feeling.

Unsure.

have never experienced euphoria

if the doctor is realy concerned he would prescribe a second pill remember the high
blood pressure high cholesterol pill.it didn't work.

no idea

caregivers only want me to feel better & alleviate horrible pain

my doctors are not concerned about that what they are concerned with is keeping me comfortable.  I have great drs.

Doctor does not have a concern regarding abuse.

Although I would have to say he is an awesome doctor, he is the one that got to the root of the problem.

I don't know.

maybe.

I would think so.

I don't think there is anything that is going to help Drs to understand the horror of RSD and the pain.

i do not get any type of feelings that I would say make me feel high.

don't know

again pain relief is the goal, they would be fine either or

My caregiver does not worry about me. He perscribes the exact amount from visit to vist, there are no leftovers, I use it for pain not for a buzz

doesn't apply ... not applicable

I dont experience euphoria. I get pain relief.

Because I do not experience euphoria. Far from it.

probably

I've never experienced euphoria from taking medications, esp not while taking them for CRPS. Euphoria might be a nice change from CRPS Hell though.

I do not have any caregivers, so I don't believe this question applies to me.

This question did not let me choose  the option I wanted. I am unsure

I don't abuse my medication, and if I have any unusual side affects, that is discussed with my Dr. and we usually try something
different.

I'm lucky if I can get any pain control, let alone feel euphoric! Even on these meds I'm still in constant chronic pain, as I have been for 13 years.

My doctor just wants me to improve and find some releif. They count my pills each visit & drug test each patient for compliance.

I have taken them for years and have never experienced any such effect.

some of the older docs who don't understand our pain

I have never had an issue with feeling additional effects such as euphoria.

Euphoria? Time to get back to reality. People in Chronic Pain, do not experience euphoria from their prescriptions. To suggest so, is insulting.

No, that's a ignorant question!!

If  Opiods contained a component blocking the brain from forgetting to breathe, or from signaling the heart to beat, then use would be encouraged.

I have never felt any kind of euphoria.  I feel nothing except a reduction in pain.  I have never taken more than I was prescribed.

I want my sister to use her medication the same way she has alwayed used them. She has never been high off of this stuff.

My doctor will prescribe opioids, but they make me sick, so I'm left with less effective medications that really don't help with my pain relief.

I'M NOT ON  ANY OPIODS

I don't experience it, but it I did, I am sure caregiver would feel relieved with an
abuse-deterrent component.

I don't have a caregiver, but I have never had a euphoria feeling, I thought if you had so much pain it was working on you didn't get "high"

not applicable

I never feel any euphoric effect whatsoever from my meds. I think my caretakers know that. The only side effect I feel is rare, occasional sleepiness.

I have the greatest team of doctors-we have excellent communication and trust.

My husband feels just like me, whatever it takes to control most of this pain, there is no quality of life like this was.

I've never had a problem with abuse, but if there were a deterrant out there for
opioids to be more "safe" then that would be good for everyone

I don't have a caregiver. I don't have an abuse issue with any medication/opiate I take/taken for over 3 years. I don't "get high" from opiates either

Simply because of possible abuse by people who do not have pain.

I dont get any the effect that is but if the person is in real pain they will not get addicted , but if they are not they may get addicted to them.

VA says not on approved list and no one licensed to write scrip

i have no care giver, when your in this much pain in my experience i get no euphoric effects from my meds!!

Not sure if applies- rarely take enough to feel 'high'. Usually sleepy at best, but
does affect memory and depression.

My loved ones are more concerned that my pain is not being controlled. They are just desperate to see me get some relief.

no, my doctor is wonderful and I am careful to take all meds. as directed.  An
overdose of tylenol could kill you.  It is the user not the medicine.

they would be more comfortable if the fear factor of reprisal were removed more
than anything

I do not think my Dr. thinks that way. He use to really care for his patients but now it seems his attitude had changed.

They would love to put the whole world on Methadone. If you ask me, it's more
dangerous in this nation than OxyContin because it does not metabolize.

I have been discriminated against since I first was injured,(in 2002), because of my age (21) & profession (music/entertainment industry)

I think it depends on the person. personally I dont feel any euphoria effect from my medication "at all".I feel those of us who are treating CRPS dont

I think it would help in my profession, a nurse, for the hospitals at which I have
worked and will work.

they support me and believe I am stable

Me periodically taking pain medication is not an issue with any of my family members

I think so but I don't know that for sure.

My physician and I openly discuss abuse issues and to try to combat that he will switch my medication for pain about every 6 months

My husband is aware that I cannot tolerate higher doses.

But I don't have that experience with my pain meds, and I am on 100mg Fentanyl Patch and Lortab pills. Doesn't phase me, just takes the edge off.

NO MY CARER COULDN'T CARE LESS HE'S SEEN ME WITHOUT INTRATHECAL MEDS & KNOWS THAT I BECOME UNCONSCIOUS & ALSO RESULTED IN A CODE BLUE  HOSPITAL 6HRS.

I have never had an urge to abuse my meds after 15 years.  Restricting these meds to all would no be the best solution- maybe to risky patients only.

I'm my own Caregiver.

ido not know how to answer this one...the people i know do not get an ephorbic
feeling only with hope a reduction in pain that lead to a happier mood.

I have never abused my drugs & my Dr knows this.I DN get a high like a 'druggy'
Sure I feel it, but not like before I had the pain. This is different.

Yea, definitely. My Mom is so afraid I will get addicted, but I haven't in the 26 years of taking them.

I do not give anyone my medication but because it could be taken off the market because of others abuse of it, something has to be done

my family is afraid i will become addictived to roxicet

He hates to see me with chronic and constant pain and not able to enjoy life

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