In Pain, Out of Work and Can't Pay the
A Resource Directory for People with CRPS
Anyone who has Complex Regional Pain Syndrome (CRPS), or has
a family member or friend afflicted with it, knows how physically,
emotionally, and financially devastating it can be. We constantly
get requests for help, and although there is not a simple
solution, there are many programs that may help you. Four
years ago we published the first edition of this directory
to try and give some direction to our members. Since then,
we have received many suggestions from members on how to expand
the directory and make it more user friendly. We hope we have
done so, with added information and expanded phone and website
contact lists. There are no simple answers for those of you
who need financial assistance while other decisions are pending,
but you do have a number of options.
The good news is there is help out there. However, much of
it is highly bureaucratic and time consuming. If you can,
enlist a friend or family member to advocate for you with
some of these agencies.
Keep in mind that your physician can be your most important
ally. Finding a physician or other healthcare professional
who can document your condition and your treatment is the
key to success in getting any kind of help. Make sure you
have an alliance you can trust.
In many cases you may have to educate or update your physician
and other health care providers about programs available.
Much of the information on this directory is referenced to
the web. In today's information environment, it is the easiest
and fastest way to negotiate the myriad programs out there.
However, we have tried to be sensitive to the fact that many
people still do not have easy access to online information;
we have included mailing addresses and telephone numbers where
This kind of project will always be a work in progress,
and we hope that anyone who has additional information to
share will do so via e-mail to firstname.lastname@example.org or mail to RSDSA, PO Box 502, Milford, CT, 06460.
and Private Organizations
Finding Free Clinics
October 26, 2010