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Youth
 

New Brochure: Helping Youth Succeed in School

RSD, My Dad and Me, A downloadable coloring book written by Barbara Schaffer and illustrated by Josh Treiber

Neighborly love lives in Medfield

February 24, 2011, Medfield, Massachusetts
An 11-year-old-girl, Karen Richards suffers from three different incurable diseases that take an incredible financial toll on her family. With the kindness of Doug Masters, a local business owner, the family is able to get their daughter the help she needs to live a more normal life.
Click here to read the story.   

From Medication to Baking Cookies, Children’s Hospital Offers Unique Therapy to Kids in Chronic Pain
January 14, 2011, Stanford, California
The Pain Management Center at Stanford’s Lucile Packard Children’s Hospital, one of the country’s leading pediatric pain clinics, has been a leader in creating a multi-front approach to pain treatment in children, encompassing a combination of medication, physical therapy and emotional and cognitive solutions. 
Click here to read the story.

 

Walk for RSD
April 2010, Blue Bell, Pennsylvania
Ellen Chinn's Mitzvah project was to raise awareness of CRPS and funds for both the RSDSA Research Fund and the Children's Hospital of Philadelphia (CHOP). Click here to read Ellen's story (PDF).

 

Breakthrough Clinic Helps Kids Cope With Pain
Source

The viewing of this video is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.

Cleveland Clinic: Pain clinic last resort for children
Source

CLEVELAND -- Most of us have experienced physical pain but imagine it being so intense you can hardly move or be touched. That's life for some teenagers at the Cleveland Clinic Pediatric Pain Rehabilitation Program.

The viewing of this video is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.

Special Night for Baseball Fan Battling Painful Disease
Elisa Amigo, Fox 8 News Reporter
July 27, 2010

 

Years of vomiting began when child was just an infant
By Sandra G. Boodman
Special to The Washington Post
November 15, 2010

Stories of Hope

HuffPost's Greatest Person Of The Day: Mackenzie Bearup, Georgia Teen Who Donates Thousands Of Books To Children In Need
By Dominique Fenton, The Huffington Post

Ayuda que simboliza esperanza para Estefany
Nircia R. Del Rosario Meléndez, Periódico Horizonte
del 2 al 8 de junio de 2010

The Story of My Left Foot
By Melanie Dickens

Painful illness can’t keep teen from hoops (video)

Training and Conditioning: Rising Above Pain

Bethlehem Area News: Freedom High School student fighting, winning battle with debilitating illness

La Crosse Tribune: Two girls lean on each other for support against a rare disease

Elise's Story
By Christine Robinson

Alissa's Story (Video)

Anna Brilliant's Story
Testimony from the NJ CRPS Awareness/Education Bill Hearing

Changing the Course of My Dreams
By Yvonne Larity

Finding Other Ways to Give: Nicole Biller's Awareness Story

Orange Ribbons Pinned in Our Dreams
By Ashley Mahoney

Jessika's story: "Live life…uninterrupted!"
By Laura Bortolusso-Welch, Trinidad & Tobago. W.I.

Melanie's Story

McGee March Madness 2008

Kim Bosse's Essay from McGee March Madness 2008

Stephanie Lewis's Essay from McGee March Madness 2008

Surviving College with CRPS
By Ashley Mahoney

Parents

Does Your Child’s School Have a "Faker’s Club"?
By Dorthy Switalski

RSDParents Yahoo! Online Support Group

Random Eruptions
By Randy Erickson
A father's thoughts on his daughter's CRPS

CRPS—A Parent's Perspective

What We Can Learn From Aya Ravek

Your Child Is Diagnosed With CRPS

Publications and Resources

Final Progress Report: RSDSA and RSDhope Grant
(Related: RSDSA and American RSDHope Award Research Grant to the Children's Hospital of Los Angeles)

Hope for Children with CRPS: The Mayo Family Pediatric Pain Rehabilitation Center (PPRC)
By David Leslie, MD, PPRC Clinical Director, and Elizabeth A. Carpino, MA, PPRC Clinical Research Coordinator

Author: Logan DE, Chiang G, Condon M, et al
Title: Development of an intensive pain rehabilitation program for children and adolescents with Complex Regional Pain Syndrome
Source: Pediatric Pain Letter. 2010;12(1):1-6. Commentary.

The Very Real Pain of RND
From The Children's Institute

Author: Lebel A, Becerra L, Wallin D, et al
Title: fMRI reveals distinct CNS processing during symptomatic and recovered complex regional pain syndrome in children
Source: Brain. 2008;131:1854-1874.

Amplified Abdominal Pain in Children
By Lori Brake, PTA; Jennifer Sherker, PsyD; David Sherry, MD; Kathy Fash, PT, DPT, CSCS, CBIS

Management of Pediatric Patients with Complex Regional Pain Syndrome
By Robert T. Wilder, MD, PhD
(More Medical Articles)

Pediatric CRPS Tri-Fold Brochure
This brochure offers information and resources for the family and friends of youth with CRPS and those who want to help.

Pediatric CRPS Slide Kit (PDF)

Take Flight With Hope: Stories of Hope and Transformation
This brochure offers an array of patient stories, and as Executive Director Jim Broatch, MSW, writes "People make changes, they move forward, they live lives they never imagined they could or would. CRPS brings huge losses, but, as you will read, there are significant gains as well."
Single copies are available free for our members. Additional copies are available for $2 (members) and $3 (non-members).

Websites
(More Related Sites)

The Advocacy Center provides consumer-driven services to support people with disabilities and their families in achieving their goals. Through information-sharing, individual advocacy support, independent service coordination and eductional workshops, we advance people's knowledge of resources and help them to build life-long advocacy skills. Our leadership development programs prepare individuals to help others as volunteer lay advocates, to influence policy, and to promote understanding and acceptance of people with disabilities.

fightingagainstrsd is a website by teenagers who have CRPS.

Kids in Pain (UK) provides support and friendship to young people suffering from a chronic pain condition and their families.

Mothers Against Chronic Pain, is an organization of Moms, Dads, and concerned family members and friends that are looking for better ways to treat, cure, and take care of children who suffer from chronic pain conditions such as CRPS, EDS, and others.

Pain in infants, children, and adolescents: Resources for parents and professionals

Rock for RSD

RSD in Motion

RSD Hope Teens is an online support group for kids and teenagers suffering from CRPS.

RSD/CRPS Awareness in Teens Facebook Group

 

Updated April 25, 2011

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