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| Elise was a gymnast, dancer, and sports aerobics competitor when she was diagnosed with CRPS in November 2005, following ankle surgery. She had a goal and was determined to reach it. She has currently reached the Australian Finals. |
Jessika lives in Trinidad & Tobago, West Indies. This photo
shows her kneeboarding for the first time after treatment
for CRPS.
Jessika believes in herself and her motto is
"Live life… uninterrupted!" |
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| Yvonne Larity's goal was
to be on the Olympic track team. She was diagnosed with
CRPS in October 2005 and has had to alter her goals.
She now rides competitively. |
University of Illinois' Kayani Turner (11) played volleyball through the pain of her CRPS.
Credit: Adam Babcock
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Anabel Gilbert kicks up her heels for her senior picture to celebrate her triumph. Read her story here. Photo by Precious Portraits by Connie. |
Breakthrough Clinic Helps Kids Cope With Pain
Source
The viewing of this video is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.
Stories
Elise's Story
By Christine Robinson
Alissa's Story (Video) Anna Brilliant's
Story
Testimony from the NJ CRPS Awareness/Education Bill Hearing Changing the Course of My Dreams
By Yvonne Larity Finding Other Ways to Give: Nicole Biller's Awareness Story
Orange Ribbons Pinned
in Our Dreams
By Ashley Mahoney
Jessika's story: "Live
life …uninterrupted!"
By Laura Bortolusso-Welch, Trinidad & Tobago. W.I.
Melanie's Story
McGee March Madness 2008
Kim Bosse's Essay from McGee March Madness 2008
Stephanie Lewis's Essay from McGee March Madness 2008
Surviving College with CRPS
By Ashley Mahoney
Parents Does Your Child’s School Have a "Faker’s Club"?
By Dorthy Switalski
RSDParents Yahoo! Online Support Group
Random
Eruptions
By Randy Erickson
A father's thoughts on his daughter's
CRPS
CRPS—A Parent's Perspective
What We Can Learn From Aya
Ravek
Your Child Is Diagnosed
With CRPS
Publications and Resources
Author: Lebel A, Becerra L, Wallin D, et al
Title: fMRI reveals distinct CNS processing during symptomatic and recovered complex regional pain syndrome in children
Source: Brain. 2008;131:1854-1874.
Amplified Abdominal Pain in Children
By Lori Brake, PTA; Jennifer Sherker, PsyD; David Sherry, MD; Kathy Fash, PT, DPT, CSCS, CBIS
Management of Pediatric
Patients with Complex Regional Pain Syndrome
By Robert T. Wilder, MD, PhD
(More Medical Articles)
Pediatric CRPS Tri-Fold Brochure
This brochure offers information and resources for the family and friends of youth with CRPS and those who want to help.
Pediatric CRPS Slide Kit (PDF)
Helping
Children/Youth With CRPS Succeed in School
This brochure is designed to help schools accommodate
the special needs of children with CRPS.
Take Flight With Hope: Stories of Hope and Transformation
This brochure offers an array of patient stories, and as Executive Director Jim Broatch, MSW, writes "People make changes, they move forward, they live lives they never imagined they could or would. CRPS brings huge losses, but, as you will read, there are significant gains as well."
Single copies are available free for our members. Additional copies are available for $2 (members) and $3 (non-members).
Websites (More Related Sites)
The Advocacy Center provides consumer-driven services to support people with disabilities and their families in achieving their goals. Through information-sharing, individual advocacy support, independent service coordination and eductional workshops, we advance people's knowledge of resources and help them to build life-long advocacy skills. Our leadership development programs prepare individuals to help others as volunteer lay advocates, to influence policy, and to promote understanding and acceptance of people with disabilities.
fightingagainstrsd is a website by teenagers who have CRPS.
Kids in Pain (UK) provides support and friendship to young people suffering from a chronic pain condition and their families.
RSD Hope Teens
An online support group for kids and teenagers suffering from CRPS.
Updated
June 5, 2009
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