RSD, My Dad and Me, A downloadable coloring book written by Barbara Schaffer and illustrated by Josh Treiber
Neighborly love lives in Medfield
February 24, 2011, Medfield, Massachusetts
An 11-year-old-girl, Karen Richards suffers from three different incurable diseases that take an incredible financial toll on her family. With the kindness of Doug Masters, a local business owner, the family is able to get their daughter the help she needs to live a more normal life.
Click here to read the story.
From Medication to Baking Cookies, Children’s Hospital Offers Unique Therapy to Kids in Chronic Pain
January 14, 2011, Stanford, California
The Pain Management Center at Stanford’s Lucile Packard Children’s Hospital, one of the country’s leading pediatric pain clinics, has been a leader in creating a multi-front approach to pain treatment in children, encompassing a combination of medication, physical therapy and emotional and cognitive solutions.
Click here to read the story.
Walk for RSD
April 2010, Blue Bell, Pennsylvania
Ellen Chinn's Mitzvah project was to raise awareness of CRPS and funds for both the RSDSA Research Fund and the Children's Hospital of Philadelphia (CHOP). Click here to read Ellen's story (PDF).
Breakthrough Clinic Helps Kids Cope With Pain Source
The viewing of this video is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.
Cleveland Clinic: Pain clinic last resort for children Source
CLEVELAND -- Most of us have experienced physical pain but imagine it being so intense you can hardly move or be touched. That's life for some teenagers at the Cleveland Clinic Pediatric Pain Rehabilitation Program.
The viewing of this video is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.
Pediatric CRPS Tri-Fold Brochure This brochure offers information and resources for the family and friends of youth with CRPS and those who want to help.
Take Flight With Hope: Stories of Hope and Transformation
This brochure offers an array of patient stories, and as Executive Director Jim Broatch, MSW, writes "People make changes, they move forward, they live lives they never imagined they could or would. CRPS brings huge losses, but, as you will read, there are significant gains as well." Single copies are available free for our members. Additional copies are available for $2 (members) and $3 (non-members).
The Advocacy Center provides consumer-driven services to support people with disabilities and their families in achieving their goals. Through information-sharing, individual advocacy support, independent service coordination and eductional workshops, we advance people's knowledge of resources and help them to build life-long advocacy skills. Our leadership development programs prepare individuals to help others as volunteer lay advocates, to influence policy, and to promote understanding and acceptance of people with disabilities.
Kids in Pain (UK) provides support and friendship to young people suffering from a chronic pain condition and their families.
Mothers Against Chronic Pain, is an organization of Moms, Dads, and concerned family members and friends that are looking for better ways to treat, cure, and take care of children who suffer from chronic pain conditions such as CRPS, EDS, and others.
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