One Women's Batle Against Chronic Pain
Kathy tells E.R. physician Dr. Travis Stork what it's like living with reflex sympathetic dystrophy (RSD), a rare and debilitating nervous system disorder that causes inflammation, muscle spasms and pain.
Yes You Can... Becoming Your Own Advocate
This film stresses the importance of building an interdisciplinary treatment team and of the crucial need to become your own advocate for your care and recovery.
In 2014 the RSDSA, will celebrate its 30th anniversary. To honor this event, several initiatives have been planned.
The RSDSA will sell several items that will not only help spread awareness of CRPS, but also give us the opportunity to use these items to raise additional funds to further our efforts. Click Here to view these items and order.
That's the Spirit
By Debra Nelson-Hogan
Across the campus of Ball State University, students are sporting
orange awareness ribbons, similar to those used to symbolize
the fight against AIDs or breast cancer. The ribbons, used
to symbolize the fight against CRPS pain, were the brainchild
of Ashley Mahoney...read more
Take copies of RSDSA materials, such as the newsletter
or any of our brochures, to your physician's office or medical
center. Call 877.662.7737 for additional copies.
copies of the RSDSA Awareness poster and hang them in
highly visable locations-drug stores, hospitals, medical groups,
Educate yourself about the latest CRPS developments. Contact
service clubs in your community (ie, Lions, Rotary, Kiwanis,
church and synagogue groups, women's leagues) and offer
to be a guest speaker. Most individuals are astounded and
grateful to learn about CRPS. You can use our PowerPoint® presentation on the Diagnosis and Treatment
Contact your local media about doing a story on CRPS.
We can provide the newspaper, radio, or television station
with information on CRPS.
Write an article for our newsletter. Consider writing
a book review (the book should of course be relevant to
living with CRPS or chronic pain in general), helpful
hints, or a success story about something you have done
despite your CRPS.
Make Your Own RSDSA Fundraising Canisters
can download labels to make fundraising canisters that help
raise money for research. You can keep them on your desk at
work, or ask local merchants if you can place them on the
counter near the cash register.
The labels are designed for tall
and skinny cans (like Pringles®) and short
and fat ones that can be used on plastic coffee cans.
These types of cans come with plastic lids, so you can make
an slit for people to insert money.
When you send the proceeds to RSDSA, we will list your contribution
in the Donations department of our newsletter.
Your RSDSA membership
is important. There is power in numbers, and we would like
to see our membership, currently over 7,000, grow to encompass
all those who are afflicted with CRPS. When we speak to the
legislature, the pharmaceutical companies, and the medical
associations. Our voice is strong and our message is clear.
Anything you can do will be greatly appreciated by the CRPS
community. We look forward to working with you. You can contact
us online at firstname.lastname@example.org.