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CRPS-related Websites

General Information and Raising Awareness

Youth with CRPS

Research

Online Support and Chat Groups, Forums, and Blogs

Facebook

How To Cope With Pain
Website and Blog for People in Chronic Pain

Other Related Websites

Healthcare

Legal

  • American Association of Nurse Life Care Planners
  • Legal Services Corporation (LSC) operates as a private, nonprofit corporation that promotes equal access to justice and provides grants for high-quality civil legal assistance to low-income Americans. LSC distributes more than 95 percent of its total funding to 137 independent nonprofit legal aid programs with 918 offices that provide legal assistance to low-income individuals and families in every congressional district.
  • The National Veterans Legal Services Program (NVLSP) is an independent, not-for-profit, charitable organization acting to ensure that the US government honors the pact made with our 25 million ve terans. They provide Advocacy and Training, Education and Publications, and Pro Bono Litigation. NVLSP also recruits, trains, and assists thousands of volunteer lawyers and veterans’ advocates. Their publications empower veterans, their families and their advocates to obtain the benefits they’re entitled to by clearly outlining their rights under the law.

Pain Education and Raising Awareness

  • Central Pain Syndrome Alliance (CPSA)
  • Commission on Accreditation of Rehabilitation Facilities is an independent, not-for-profit organization that reviews and grants accreditation services as requested by a facility.
  • The Facial Pain Association (formerly The Trigeminal Neuralgia Association) serves as an advocate for patients living with neuropathic facial pain, including trigeminal neuralgia, by providing information, encouraging research and offering support.
  • For Grace is a not-for-profit organization passionately devoted to ensuring the ethical and equal treatment of all women in pain.
  • International Association for Cannabis as Medicine (IACM) is a scientific society that advocates the improvement of the legal situation for the use of the hemp plant (Cannabis sativa L.) and its pharmacologically most important compounds, the cannabinoids, for therapeutic applications through promotion of research and dissemination of information. Pain-related cannabis-related research is also available here.
  • The Mayday Pain Project goal is to increase awareness and provide objective information concerning the treatment of pain.
  • National Center for Complimentary and Alterative Medicine (NCCAM) is the Federal Government's lead agency for scientific research on complementary and alternative medicine (CAM).
  • The National Fibromyalgia Association develops and executes programs dedicated to improving the quality of life for people with fibromyalgia.
  • National Institute of Neurological Disorders and Stroke (NINDS) has a listing of clinical trials for neuropathic pain and good information about CRPS.
  • National Institutes of Health (NIH) Pain Consortium coordinates activities and programs related to pain research.
  • National Organization for Rare Disorders (NORD) is a clearinghouse for information concerning disorders affecting fewer than 200,000 individuals worldwide. NORD also sponsors an on-line used medical equipment exchange and publishes two newsletters: Orphan Disease Update and NORD Online.
  • NIH Office of Rare Diseases has information on more than 6,000 rare diseases.
  • Opioids911-Safety is a single-purpose, independent, noncommercial, Internet-based educational activity from Pain Treatment Topics for patients and their caregivers on the proper and safe use of opioid pain relievers. Our mission is to provide an understanding of opioid analgesics and their various risks, and to suggest specific actions for preventing opioid-related problems. Instruction also is provided on recognizing opioid problems if they do occur and on being prepared for what to do during an emergency. This is a first-of-its-kind educational program for patients/caregivers solely dedicated to all aspects of opioid safety. Plus, there are special instructions and resources for healthcare providers in using Opioids911 at the point-of-care.
  • Pain.Com is an excellent resource for both professionals and consumers. It has a special "Ask the Doctor" section that contains frequently asked questions and answers about CRPS diagnosis, treatment, and management.
  • Pain in infants, children, and adolescents: Resources for parents and professionals
  • Pain and Sleep Apnea (from the American Sleep Apnea Association) Most patients with sleep apnea do not know they have the disorder, but it should be ruled out before patients are given paid medications that can affect their respiratory drive or relax their muscles.
  • Pain Pathways Magazine provides resources for people living with pain.
  • Pain Treatment Topics serves as a noncommercial resource for healthcare professionals & their patients, providing open access to clinical news, information, research, and education for a better understanding of evidence-based pain-management practices.
  • The Safe Computing Tips site and blog are designed to help you be more comfortable and productive while using your computer. It will also help you reduce your risk of experiencing painful and disabling injuries or disorders such as CTS, RSI, and MSD.

Pain-related Academies, Associations, and Societies

  • American Academy of Physical Medical and Rehabilitation is the national medical society representing more than 7,500 physicians who are specialists in the field of physical medicine and rehabilitation (PM&R).
  • American Academy of Pain Management is the largest interdisciplinary pain society and largest physician-based pain society in the United States.
  • American Chronic Pain Association (ACPA), a non-profit organization with more than 800 chapters, provides a support system through group activities to those suffering chronic pain. ACPA publishes guidelines to help select a pain unit and a quarterly newsletter.
  • American Pain Foundation (APF) is a patient information, education and advocacy organization, helping those who suffer from pain.
  • American Pain Society (APS) is a "multidisciplinary educational and scientific organization dedicated to serving people in pain." APS publishes a directory of its members. APS will mail a free inquiry packet that contains treatment referrals for your state or you may search for a nearby pain facility online.
  • American Society of Anesthesiologists (ASA) is an educational, research and scientific association of physicians organized to raise and maintain the standards of the medical practice of anesthesiology and improve the care of the patient.
  • International Association For The Study Of Pain (IASP) is an international, multidisciplinary, not-for-profit professional association dedicated to furthering research on pain and improving the care of patients with pain.
  • The International Pelvic Pain Society was established in 1996 with two primary objectives: to educate health care professionals how to diagnosis and manage chronic pelvic pain, thereby changing the lives of patients worldwide; and to bring hope to men and women who suffer from chronic pelvic pain by significantly raising public awareness and impacting individual lives.

Prescription Medication and Other Patient Assistance Programs

  • Directory of Prescription Drug Patient Assistance Programs provides the contact information on pharmaceutical companies that provide prescription medicines free of charge to physicians (also available in PDF format).
  • Disabled Dealer Magazine specializes in bringing products and services to the elderly and disabled community in one simple and informative publication. Each issue of Disabled Dealer Magazine also features several articles and stories on mobility assistance equipment and home medical supplies and services, the latest medical reports, new government programs and federal benefits for the disabled, and listings for events.
  • RXList: The Internet Drug Index provides information on medications and other helpful sites.
  • The Wheelchair Foundation is a not-for-profit organization leading an international effort to create awareness of the needs and abilities of people with physical disabilities, to promote the joy of giving, create global friendship, and to deliver a wheelchair to every child, teen and adult in the world who needs one, but cannot afford one.
  • Zero Unintentional Deaths is a campaign developed to educate physicians, people who suffer chronic pain, and the community in general about the serious issue of unintentional overdose deaths relating to methadone and other prescription medications.

Research

  • AllTreatment is a drug rehab center directory and substance abuse information resource. The website is dedicated to educating people about drug and alcohol addiction. AllTreatment.com features a complete directory of drug addiction treatment centers, an article database about alcoholism and drug abuse, a blog about current drug news, and much more.
  • PubMed is a service of the U.S. National Library of Medicine that includes over 18 million citations from MEDLINE and other life science journals for biomedical articles back to the 1950s. PubMed includes links to full text articles and other related resources.

Social Security and Workers Compensation

  • AllSup, Inc. is a nationwide Social Security Disability Insurance benefits provider with a 97% success rate. Allsup is a great resource for disabled people, and helps make receiving their SSDI benefits easier.
  • AFL/CIO contains an excellent section on worker's compensation: bimonthly newsletter, new court cases of interest to injured workers, and related links.
  • GENEX Disability helps those with a disability navigate through the complex SSDI process so they can claim the benefits they are entitled to.
  • Job Accommodation Network (JAN) is an international consulting service that provides information about job accommodations and employability of people with disabilities.
  • National Association of Injured and Disabled Workers (NAIDW) is a nonprofit charitable foundation where injured and disabled workers and their families find the resources, support, and guidance they need to reclaim their lives. NAIDW’s purpose is to provide short-term financial assistance to injured & disabled workers and their families as a result of injury, disability or illness.
  • National Organization of Social Security Claimant's Representative (NOSSCR) provides representation and advocacy on behalf of people who are applying for Social Security and Supplemental Security.
  • Workers Comp Rx is a pharmacy service for injured workers with open claims. It provides injured workers medications when they need them without any out-of-pocket costs.

Travel

  • Air Charity Network provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.
  • Mercy Medical Airlift Charitable Air Transportation is a not-for-profit organization dedicated to providing charitable air transportation for patients in need.
  • MedicAlert provides identification and information for emergencies.

 

Updated April 10, 2014

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