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Support Groups

The number of support groups for CRPS is thankfully growing everyday. To locate a support group close to you, please use the map or list below to select your state.

For those who live in close proximity to state borders, please also check your neighboring state as there may be a support group which may actually be closer to you than the support group in your state.

For links to Support Group websites, Online Forums / Chat Rooms, and other information, please see Related Sites.

If you would like to start a support group in your area, please contact the home office, and please watch this short video.

Starting a CRPS Support Group
Sharon Weiner, VP of the RSDSA Board of Directors and President of Living with RSDS, Inc. shares her 17-years of wisdom and experience on how to start and maintain a thriving support group for people with CRPS, family members, and medical professionals. Invaluable advice!

Groups from the American Chronic Pain Association welcome anyone who is living with an ongoing pain problem. Please call 1.800.533.3231 to see if there's a group near you.

If you are listed as a Support Group and have any changes, please contact, Pam Kientzler at RSDSA by calling 203.877.3790 or e-mail her at

Updated February 23, 2015


Alaska New York Illinois Indiana Montana Wyoming New Mexico South Carolina Virgina West Virgina Kentucky Ohio Iowa Missouri Tennessee Kansas Florida Georgia Mississippi Michigan Wisconsin Oklahoma Nebraska Louisana Minnesota South Dakota North Dakota Vermont New Hampshire Massachusetts Rhode Island Connecticut New Jersey Delaware Maryland North Carolina Pennsylvania Maine District of Columbia Idaho Colorado Utah Nevada Washington Oregon Texas Arizona Arkansas Alabama California Hawaii

Alaska Hawaii




Gulf Coast RSD/CRPS Support Group
Meets the 3rd Monday, of every month from 6 - 7 pm. Please email if you are attending.
Location: Red Bar Espresso and Market, 7921 Tanner Williams Road, Mobile, AL
Contact: Tanya Crawford
RSDSA Registration Number: 25704
Tel: 251.680.8495

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There are currently no support groups in Alaska. Find an online support group here.

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North Phoenix

Phone and E-mail Support
Contact: Leslie Glassman
RSDSA Registration Number: 19755
Tel: 623.247.3746


RSD Care and Share Support Group of Phoenix
Meets 3rd Saturday, 1:00 pm
St. Joseph's Medical Center, 3rd Ave and Thomas, Phoenix
Contact: Margie St. Pierre
RSDSA Registration Number: 9928
Tel: 602.843.2412

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New Group
Contact: Shelia Lashley
RSDSA Registration Number: 22875

Little Rock

Power Over Pain
Meets 2nd Tuesday every month
Location: The Community Room at Arkansas Surgical Hospital
5201 Northshore Dr., North Little Rock, AR.
If you can't make a meeting Debbie and Barbara also do Phone, E-mail, and FaceBook Support
Contact: Debbie
RSDSA Registration Number: 12873
Tel: 501.240.2209
Contact: Barbara
RSDSA Registration Number: 836

Fort Smith

RSD/CRPS Fort Smith
Meets the 2nd Thursday every month from 6 - 7 pm
Mercy Hospital, 7301 Rogers Avenue, Room - Udouji, Fort Smith
Contact: Corina Chapman
RSDSA Registration Number: 28118
Tel: 479.651.9432

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Costa Mesa

Orange County CRPS Survivors
Meetings are the 2nd Tuesday of the month at 11 am
Please contact Kristie for meeting location
Contact: Kristie McCurdy
RSDSA Registration Number: 24110

Foster City

All Fired Up
Starting March 2015 - 3rd Thursday monthly from 3-5pm
Peninsula Jewish Community Center, 800 Foster City Blvd., Foster City, CA
Pre-Registration is required for the meetings.
Contact: Elisa Friedlander
RSDSA Registration Number: 27642
Tel: 650.756.8330 Email:

Northern California

FaceBook: and
Meet-up Group Address:


Inland Empire RSD Support Group
Meetings are usually once a month from March - September
2473 Mercedes Avenue, Highland, CA
Please check the website for exact times and dates
Contact: Pattie Rosario
RSDSA Registration Number: 18111

Los Angeles and Orange County

BorderLine RSD/CRPS LA & Orange County, CA
Created this Facebook group to reach out to those suffering from RSD/CRPS in area of La & Orange counties-Whittier, Brea, La Habra, Fullerton, La Mirada.
Contact: Patricia Luker
RSDSA Registration Number: 1662

Los Angeles

USC Chronic Pain Support Circle
The USC Support Circle will be held the 3rd Saturday of each month to provide support, exchange information, provide education, resources, and tools for people dealing with chronic pain in a safe and caring atmosphere. There will plenty of street parking close to the facility. Please feel free to bring anything that will help you be comfortable. Refreshments will be provided.
Please RSVP at least 1 day prior to each meeting to
Location: USC Occupation Therapy Department, Clinical Sciences Center, 2250 Alcazar Street, Suite, 133, Los Angeles, CA 90089
Contact: Robin Kohn RN-BC, Board Certified Pain Management Nurse Clinical Facilitator
RSDSA Registration Number: 19439

Los Angeles CRPS/RSD Pain Support Group
Meetings to start on Monday, April 15, 2013 from 9 - 10:30 am, please call to RSVP by April 11 if interested in attending this meeting. Going forward meetings will be held every Monday, 9 - 10:30 am at the Semel Institute Building
740 Westwood Blvd., Room C8-639
(between Leconte and Charles E. Young at the UCLA Medical Center).
Contact: Evelyn Poplawski, MA, LMFT
RSDSA Registration Number: 5546
Tel: 818.554.3635

Marin County

Marin County RSD/CRPS Support
Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome support group in Marin county and the whole bay area. Not much is known about this rare condition and all we can do is help each other.
Contact: Sam Shillinglaw
Tel: 415.246.8457

San Diego

San Diego RSD/CRPS Hope 4 Cure Support Group
Meeting will be the 3rd Wednesday of the month at 11 am at Panera Bread, 5620 Balboa Avenue, San Diego
Contact: Irina Lockwood-Devries
RSDSA Registration Number: 22834
Tel: 858.366.3991

Southern California!/groups/RSD.CRPS.Southern.CA/


CRPS/RSD Support Group
Rabobank Community Room
1025 Las Tablas
Templeton, CA 93465
3rd Tuesday of every month from 6 to 7 pm
Can't make the meeting, Suzanne also does Telephone and E-mail Support
Contact: Suzanne Miller
RSDSA Registration Number: 19439
Cell: 805.704.5970, E-mail:


Contact: Jo Hewitt
RSDSA Registration Number: 22072
Tel: 707.365.1228

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There are currently no support groups in Colorado. Find an online support group here.

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Phone and E-mail Only
Contact: Barbara
RSDSA Registration Number: 7647
Tel: 203.481.7398 (Barbara cannot returns toll calls)


US Pain Foundation, Inc.
Meets weekly
Contact: Paul Gileno
RSDSA Registration Number: 13491
Address: PO Box 2182, Shelton, CT 06484


Circle of Friends
New Group for Phone Support Only
Contact: Sabrena Dixon
RSDSA Registration Number: 24343
Tel: 203.519.8782, Cell: 203.935.6998


American Chronic Pain Association - Stamford/Norwalk Chapter
The next meeting in on September 25 at 6 pm
AHP, 112 Main Street, Norwalk, CT
Contact: Robin Foote
RSDSA Registration Number: 22622
Tel: 203.355.2626

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There are currently no support groups in the Delaware. Check surrounding states for support groups: Maryland, Pennsylvania, or New Jersey. Find an online support group here.

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District of Columbia

There are currently no support groups in the District of Columbia. Check surrounding states for support groups: Maryland, Virginia. Find an online support group here.

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RSD/CRPS Support Group
Meeting 1st Tuesday of the month
Location: Living Word Christian store
5421 Fruitville Rd., Sarasota, FL
We also meet via e-mail; Join by emailing Terri at the e-mail address below.
Contact: Terri Hutchison
RSDSA Registration Number: 21784
Tel: 941.981.9391

Cooper City

Due to recent health events, we regretfully placed this support group and my better breathers support group on hold!
U.S. Pain Foundation
Do you have Chronic Pain? Take the first step and redefine a new normal for your life by enrolling in a Pain Treatment Group.
Call now to make your appointment for pre-treatment screening and start living today. Click here to download detailed information
Location: 1400 Griffin Road, Suite 109
Cooper City, FL 33328
Contact: Kristin Stover, Psy. D. & Renee Hill, M.S., VP of US Pain Foundation, and Micah Price, Psy.D., Licensed Psychologist
RSDSA Registration Number: 17847
Tel: 954.434.1886


Northeast Coast of Florida RSD Support Group
Contact: Linda Cohn, Lindsay Heffron, or Janet Tedder
Tel: 386.673.0871, E-mail:

Hobe Sound

RSD/CRPS Support Group / "CARE"
Please call for meeting information
1st United Methodist Church of Hobe Sound
10100 SE Federal Highway, Hobe Sound, FL 33455
Contract: Alyce Schackmann
Registration Number: 2179
Tel: 772.546.5189


RSD Ribbon of Hope
New Meeting Location Coming Soon
Tamara also has a group on Facebook
Contract: Tamara Cruz
RSDSA Registration Number: 22479
Tel: 727.940.7177 - after 2 pm - 7 pm, Monday-Friday


The group will meet 2nd Thursday 6 pm
3901 University Blvd. South, Health Care Plaza
Contact: Anita Davis, PT, DPT, MSM, D-AAPM
RSDSA Registration Number: 8934
Tel: 904.345.7259


Phone and E-mail Support Only
Contact: Karen McManus
Tel: 863.838.0223


E-mail support only
Contact: Nancy Carp
RSDSA Registration Number: 1756


New Group
Contact: Lana Baus
Tel: 941.592.1968

Panama City

Contact: Carmen E. Everhart
3919 Becora Ct., Panama City, FL 32405,
Tel: 850.265.3463

Port Richey

New Group - Sensitivity
The group will meet on Wednesdays at the Belmont Inn, 11736 US Highway 19, Room 403 Port Richey. The date and time will be coming shortly.
Contact: Daniel Lindner
Tel: 727.378.5843 - Room #403

Vero Beach

RSD Support Group of the Treasure Coast
Phone Support Only - 10 am to 10 pm
Contact: Liz Radloff-Martin
RSDSA Registration Number: 2118
Tel: 772.778.2777

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New Group
Contact: Lucille Miller
RSDSA Registration Number: 17178
Tel: 828.778.2600


New Group
Contact: Felechia
RSDSA Registration Number: 12522
Tel: 678.685.4429

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RSD Support Group Hawaii
Meetings to be determined. Please visit the website for more information.
Contact: Yoshiko Gerdes
RSDSA Registration Number: 22365
Tel: 808.395.2219


RSDS|CRPS Association of Hawaii RSDSA
Contact: Tina Mohr, LMT
73-4787 Halolani St. Kailua-Kona, HI 96740
Cell: 808.960.0918
Fax: 808.325.0370

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Elk Grove Village

Illinois RSDS Association
Meets 2nd Sunday, 2 to 4 pm
Conference Room 1
Alexian Brothers Hospital, 800 Biesterfield Rd.
Contact: Edwina Schaeffer
RSDSA Registration Number: 3486
Tel: 630.665.0717, E-mail: or
Contact: Tim Groark
Tel: 773.582.8051, E-mail:


RSDS/CRPS & Chronic Pain Association
Meets 3rd Sunday, 2 to 4 pm
Adventist Hinsdale Hospital
Lincoln Room
120 Oak Street, Hinsdale, IL 60521
The group now meets every other month. The next meetings will be October 21 and December 16.
Contact: Edwina Schaeffer
RSDSA Registration Number: 3486
Tel: 630.665.0717, E-mail: or
Contact: Tim Groark
Tel: 773.582.8051, E-mail:

Round Lake

Pain Specialists of Greater Chicago
Phone / E-mail support
Contact: Joy Thornborough
604 Nippersink Ave, Round Lake, 60073
RSDSA Registration Number: 2574
Tel: 847.201.8957

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Fort Wayne

Meetings and Phone Support.
Call for meeting information.
Contact: Mara
RSDSA Registration Number: 14286
Tel: 800.728.2425

Northern Indiana

Face Book Group!/rsd.northernindiana?fref=ts
Contact: Julie Osborne Brock
RSDSA Registration Number: 25676
Tel: 219.779.0204

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St. Benedict's Parish Offices. Please Call to Register.
Contact: Eva, Tel: 563.380.6672, or
Contact: Carol, Tel: 563.380.7888


Midwest RSD/CRPS Support Group
Please email Gracie for meeting information and information on weekly confidential support call on Tuesdays.
Contact: Gracie Bagosy

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KC Metro Area
Entire Area

KC Chronic Pain Support Group
Group Meetings with scheduled Guest Speakers, Online and Phone meetings.
St. Joseph Medical Center
100 Carondelet Road (I-435 and State Line Road)
Community Center, Building "D" (Community Center is behind the ER Dept.)
Kansas, MO
Meets 1st and 3rd Tuesday Evenings of the Month from 7-9 pm
Contact: Lisa Coan
RSDSA Registration Number: 10829
Tel:816.326.7111 (12 pm to 12 am CST)
E-mail:, or

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Northern Kentucky RSD Chapter
Contact: Alyce F. Rowland
Northern Kentucky RSD Chapter
PO Box 667, Burlington, KY 41005
Tel: 859-586-6180 (If no answer, call 859-743-8204)


South Central KY RSD Support Group
Meets 1st Tuesday, 1 pm CT
Lobby of Twin Lakes Regional Hospital
Leitchfield, KY 42754
Contact: Carolyn Clemons
RSDSA Registration Number: 500
345 Hopewell Rd., Caneyville, KY 42721
Tel: 270.879.4023


Meetings are held twice a month on the 2nd and 4th Friday of each month at 1 pm. For meeting location please contact Carol.
Contact: Carol Dever
RSDSA Registration Number: 12871
Tel: 502.314.2049

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New Orleans / Kenner

Learn More About RSD and CRPS
Kim is available for Phone/Email/Facebook Support
Contact: Kim Gaudet
RSDSA Registration Number: 12257
Tel: 985.400.5092 (home), 985.302.2266 (cell)


Telephone, Texting, and E-mail
Contact: Debbie
RSDSA Registration Number: 5575
Tel: 318.387.9645


New Group
Contact: Jerry Pond
RSDSA Registration Number: 14761
Tel: 318.222.5573


Cajun Angels on Fire
New Group
Contact: Brandy Romero
RSDSA Registration Number: 21843
Cell: 337.254.9045

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American RSDHope
Contact: Lynne Orsini or Karen Toner
RSDSA Registration Number: 244
Tel: 207.583.4589

Southern Maine

Chronic Pain Support Group
Meets 1st and 3rd Thursdays, 6:00 to 7:30 pm
The Pines, 10 Manor St.,Old Orchard Beach, ME
Contact: Evelyn, Tel: 207.937.5020, or
Contact: Jane, Tel: 207.934.4189

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RSDS Support Group of Southern Maryland Hospital Ctr
Meetings - (call for dates)
Contact: Tony Powell
RSDSA Registration Number: 17731
Tel: 301.645.0786

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Arlington Chapter of the American Chronic Pain Association
Meetings are free and open to anyone living with chronic pain.
Meets 2nd Friday, 11:00 am to 12:30 pm
Arlington Robbins (main) Library
700 Mass Ave.
In the ground floor Community Room
Click here for a Meeting Schedule
Contact: Cindy Steinberg
RSDSA Registration Number: 13820
Tel: 781.652.0146


Phone support (Call between 11:00 am and 5:00 pm)
Contact: Lisa Shea
Tel: 508.339.6064

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Southeastern Michigan CRPS
Phone and Email Support Only
Contact: Jannie White
RSDSA Registration Number: 6810
Tel: 248.200.7659, (1 to 3 pm)

Grand Rapids

RSDS/Chronic Pain Support Group of Grand Rapids
Meets the 2nd Monday of the month from 5 to 7 pm
Wege Center (North), Lower Level, Room 8
300 Lafayette (cross street- Cherry / Lafayette)
Grand Rapids, MI
Contact: Sherry and Cliff Mulder
1259 Diamond NE, Grand Rapids, MI 49505,
RSDSA Registration Number: 2598
Tel: 616.364.4014
Contact: Jean Arp
2446 Eden, SW, Wyoming, MI 49509
Tel: 616. 534.9281


Hands Helping Hands
Mail or Phone Support ONLY
Contact: Patti Truckey,
RSDSA Registration Number: 2606
Address: PO Box 680, Republic MI 49879
Tel: 906.376.8464

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Twin Cities South

Minnesota RSD Support Group
Open to everyone with CRPS, affected by or interested in learning about RSD/CRPS
Meets 4th Saturday, noon to 2 pm
Savage Public Library
13090 Alabama Ave. S, Savage, MN
We also have periodic Family, Firends and Caregiver support groups separate from the RSD groups. Please contact Bonnie for more information.
Contact: Bonnie Scherer
RSDSA Registration Number: 4932
Tel: 952.457.7586
Contact: Diane Keil
RSDSA Registration Number: 6982 Tel: 612.803.0417

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Cajunbabe & Co
CRPS/RSD Support Group

Telephone, E-mail or Facebook Only Support, from 8am - 5 pm
Contact: Michele Breaux-Poff
RSDSA Registration Number: 18075
Tel: 601.278.0494
Facebook Group:!/Mzlucky67


RSD/CRPS on the Gulf
New Group - TBA - Meetings temporarily will be held at Michelle's home.
Contact: Michelle Blakeney
Address: 14150 Millie Street, Diberville, MS
RSDSA Registration Number: 27639
Tel: 228.861.8632

South Haven

Midsouth RSDS Support Group
Phone Support
Contact: Linda Adams
Address: 1096 W.E. Ross Parkway West
South Haven, MS 38671
Tel: 901.473.9559

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KC Metro Area
Entire Area

KC Chronic Pain Support Group
Group Meetings with scheduled Guest Sspeakers, Online and Phone meetings.
St. Joseph Medical Center
100 Carondelet Road (I-435 and State Line Road)
Community Center, Building "D" (Community Center is behind the ER Dept.)
Kansas, MO
Meets 1st and 3rd Tuesday Evenings of the Month from 7-9 pm
Contact: Lisa Coan
RSDSA Registration Number: 10829
Tel:816.326.7111 (12 pm to 12 am CST)
E-mail:, or

St. Louis, St. Charles and the Greater Missouri Region

Missouri RSD/CRPS Support
New Group will meet the 3rd Sunday of the month. The location will be determined by members. Please see below for the Facebook link. Dan is also available for individual support, advocating, guidance, resources. Support Group Weekly Support Conference Call Fridays at 1pm, call 712.775.7085 and use access code 114759.
Contact: Dan Kaatman
RSDSA Registration Number: 14007
Tel: 314.504.6354

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There are currently no support groups in Montana. Check surrounding states for support groups: Idaho, North Dakota, South Dakota, Wyoming

Find an online support group here.

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Mother of a young daughter with CRPS would like to help others successfully navigate the school and healthcare systems.
Contact: Jackie Scott
RSDSA Registration Number: 6757
Tel: 402.990.0215

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Carson City

Chronic Pain Anonymous 12-Step Meeting
Chronic Pain Anonymous is a 12-Step fellowship of men and women who share their experience, strength and hope with each other so that they may solve their common problem and to help others recover from chronic pain and chronic illness. The only requirement for membership in CPA is a desire to recover from the emotional, physical, and spiritual debilitation of chronic pain and chronic illness and a willingness to help others to do the same.

Saturdays, 12 pm
BHS Carson Tahoe Regional Health Care, Building B
W Williams St at N Minnesota Rd, Carson City, NV 89702
Contact: Chuck

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New Hampshire


Support Group for Teens with Chronic Pain
Meets the 3rd Thursday of each month at the Nashua Library, 20 Court Street, Nashua, NH. The group is facilitated by an MSW as well as an adult that experiences chronic pain.
Contact: Kristen McGraw
RSDSA Registration Number: 17316
Tel: 603.965.6838


New Group
Contact: Debbie Fisher
RSDSA Registration Number: 13192
Tel: 603.363.4569


New Hampshire RSD Coalition
Phone support only
Contact: Doreen McCullough
RSDSA Registration Number: 16933
Tel: 603.656.9044, E-mail:

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New Jersey

Atlantic County

South Jersey Reflex Sympathetic Dystrophy Group
Atlantic County Library
Anyone with chronic pain is welcome to attend. I am also looking for volunteers. If you would like to help with the group, or for more information, please contact Melanie.
Contact: Melanie Hules
RSDSA Registration Number: 15273
Tel: 609.625.4677


E-mail Support Only
Contact: Linda Sobolewski
79 Roosevelt Blvd., Berlin, NJ 08009


New Group, contact Kurt for details.
In the Hudson County / NYC area (One 7-minute subway ride from Manhattan, and there are ferries and cabs available)
Contact: Kurt Bond
RSDSA Registration Number: 13298
Tel: 973.568.8078, E-mail:

Mt. Holly

RSD and Chronic Pain Support Group
Meets 3rd Wednesday, 7 pm
Virtua Hospital
Contact: Kathy Henson
Tel: 609.268.1565

Mt. Laurel

RSD & Chronic Pain Support Group of Mt. Laurel
Meets 4th Tuesday, 7:00 pm
YMCA of Burlington County
59 Centerton Rd., Mt. Laurel
Contact: Lisa Anne Vasey, Chairman
RSDSA Registration Number: 8606
Tel: 609.877.0213, E-mail:


RSD and You Group of Northern NJ, Inc.
Meets 4th Tuesday, 7:00 pm
St. Joseph's Hospital, Barclay Room
703 Main St, Paterson
Contact: Jaclyn Drake
RSDSA Registration Number: 6933
Tel: 201.704.0963, E-mail:


Living with RSDS, Inc.

Meets 1st Tuesday, 7 to 9 pm
Somerset Medical Center
The meeting is open to anyone with RSDS, family, friends, professionals, and others with chronic pain.
Contact: Sharon Weiner
RSDSA Registration Number: 3683
Address: 421 Courtyard Drive, Hillsborough, NJ 08844
Tel: 908.575.RSDS, Cell: 732.718.6978
E-mail:, Website:

Southern Ocean County

New Group
Robin Weiss is interested in starting an ongoing chronic pain support group. Please contact if interested.
Contact: Robin Weiss
RSDSA Registration Number: 17366
Tel: 609.978.7322, E-mail:


Contact: Tracey Vicedomini
RSDSA Registration Number: 10741
Tel: 973.823.0936

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New Mexico

Albuquerque and Las Cruces

Phone Support 24/7
Contact: Anna Montoya, RN
RSDSA Registration Number: 10779
Tel: 915.490.0084 or 505.553.3200


Phone support and quarterly meetings
Contact: Daniel Sampson
Tel: 505.315.1639

Las Cruces

Marcella wants to start a support group!
Contact: Marcella
RSDSA Registration Number: 17519
Tel: 575-312-0650

Santa Fe

Contact: Nancy Boal
RSDSA Registration Number: 4123
Address: 59 Sunlit Dr, Santa Fe, NM 87505
Tel: 505.983.3036

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New York


CRPS (RSD) Association of NY State
Contact: Marsha Rothstein-Laino, RN
RSDSA Registration Number: 12956
Tel: 516.221.7220, E-mail:


Chronic Support Group
Meets 2nd and 4th Tuesday, 10:00 am to 12 pm
Bridgewater Nursing Home, Front St, Binghamton, NY
Contact: Corky Mott
Address: 1 Grove Street, Windsor, NY 13865
RSDSA Registration Number: 20429
Tel: 607.655.2167, E-mail:


RSD/CRPS Support Group of Buffalo & WNY
Meets 4th Monday at 7 pm
St. Paul's Lutheran Church
4007 Main St. (1.5 blocks east of Eggert Rd), Eggertsville, NY
Contact: Lynda
RSDSA Registration Number: 20175
Tel: 716.337.3571 or Cell: 716.480.7424


New Group
Contact: Julie
Tel: 518.851.2265


Chronic Pain Support Group
Hosted by the Pain Management Center of St. Francis Hospital
You are cordially invited to an interactive and informative support group for patients and families dealing with Chronic Pain. The meetings are 5 times a year on Wednesday evenings from 6:30 - 8:30 pm
Location: At the DeMatteis Center
101 Northern Blvd. Greenvale, NY 11548
For Dates and RSVP: Lynn Grimaldi, RN, 516.629.2410 or
Light snacks and refreshments provided by Medtronic
Contact: Beth Seickel
RSDSA Registration Number: 12938


All meetings will be held on the first week of the month.
Please contact Laura for meeting information
Please RSVP beforehand so that we have the proper accommodations
Contact: Laura Belt Ponomarev
RSDSA Registration Number: 2888


Meets the 4th Tuesday of each month
Contact: Susan Shafer
Address: PO Box 595, Otisville, NY 10963
RSDSA Registration Number: 20411
Tel: 845.412.5356

Suffolk County

Call for meeting location and time.
Contact: Debbie Huberman
RSDSA Registration Number: 8533
Tel: 631.563.4856

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North Carolina

Camden County

Support will be available via E-mail, Phone & Skype initially, no face-to-face meetings will be planned or scheduled until after the holiday season.
Contact: Samantha Adcock
RSDSA Registration Number: 16914
Tel: 252.336.4462
Skype: Samantha.M.Adcock

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North Dakota

Grand Forks

Contact: Shana
RSDSA Registration Number: 6591
Tel: 701.741.0073

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RSD Painfree
Meets 3rd Wednesday, 7:00 pm to 8:30 pm
Pleasant Ridge Recreation Center, The Blue Room
5915 Ridge Rd., Cincinnati, Ohio 45213
Please show some love and support and let's make this happen for southwest Ohio. E-mail us if you would be interested in attending this group.
Contact: Cyndi and Patrick Ellis

Columbus and Central Ohio

Central Ohio RSD/CRPS Angel Advocates
This group is dedicated to and for RSD/CRPS patients, their caregivers and families. Our goal is to foster an educational, informal and safe harbor for all participants. We wish to cultivate relationships with one another, our Communities, Medical Professionals, Hospitals and Pain Management Centers. Most importantly we are here to make bad days turn to good days.
Meetings, Email and Phone Support (meetings to be posted on Facebook page)
Contact: Susan Blackwood
RSDSA Registration Number: 25525
Tel: 614.571.0989
Facebook page:


Phone Support Only
Contact: Thomas Stevens
RSDSA Registration Number: 17427
Tel: 614-991-5848 (h), 661-852-8173 (cell)

Ohio RSD/CRPS Support Group
The Ohio RSD/CRPS Support Group is a multi faceted group doing fundraisers, in-person meetings, providing ways for RSDSA support providers across Ohio to coordinate their own groups online, and communicate with members daily, actively supporting the Ohio Senate Bill 40, promote public awareness of RSD/CRPS by testifying at Senate hearings, speaking before the Ohio Board of Health and at universities, churches, and libraries. Ohio RSD/CRPS is also active as a support group on Face Book. The group is private only for the purpose of protecting information online. Find "Ohio RSD/CRPS Support Group" on www.!/groups/101736519891622/
Contact: Susan Diamond
RSDSA Registration Number: 10571
Tel: 440.265.1502

Dayton and Vandalia

Phone support
Contact: Cindy Lowe
RSDSA Registration Number: 2480
Tel: 937.898.1807


Phone Support 24/7
Contact: Mark Guy
RSDSA Registration Number: 13352
Address: 6041 Bridgehaven Dr, Milford, Ohio 45150
Tel: 513.831.1525, Cell: 513.659.3626, Fax: 513.831.1625

North Royalton

Ohio's Fire and Ice Angels
Meetings Phone/Email Support
Meetings are the 2nd Saturday of each month from 2:30 - 4:30 pm. The dates are 05/10, 06/14, 07/12, and 08/09.
North Royalton Library Room 124, 5071 Wallings Road, North Royalton
Please contact Lynda Avallone for phone and email support.
Contact: Lynda Avallone
RSDSA Registration Number: 20738
Tel: 440.476.1359


Mahoning Valley CRPS-RSDS Support Group
Meets 4th Tuesday, from 6:30 to 8 pm
(Call for location or leave name and number we will call you right back.)
Contact: Cindi Horkey
RSDSA Registration Number: 328
Tel: 330.469.5735 or 330.979.2359
Or Contact: Carol Polan, Tel: 330.609.5028


RSD of North West Ohio
Contact: Anita Boyer
RSDSA Registratin Number: 15679

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Oklahoma City

Oklahoma RSD/CRPS Support
Cimmaron Steak House. View website for more information.
Contact: Tracy Jones
RSDSA Registration Number: 21546

Ponca City

Phone Support Only
Contact: Vonda Goad
RSDSA Registration Number: 511
Tel: 918.738.4193

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Eagle Point / Jackson County

Phone & E-mail Support
Contact: Jennifer Pena
RSDSA Registration Number: 15968
Tel: 541.531.6114


CRPS Oregon
Meeting are held at the OHSU Waterfront, Room #6 Floor 3, 3303 SW Bond Avenue, Portland at 12 noon. The dates of the 2014 meetings are: 02/28, 03/28, 04/25, 05/30, and 06/27.
Contact: Beth Lisenby
RSDSA Registration Number 25747
Tel: 503.442.2696

Phone Support
Contact: Susanne Geraghty
RSDSA Registration Number 2800
10719 S.W. 62nd Dr., Portland, OR 97219
Tel: 503.293.0748

Phone Support
Contact: Federico Aquino
RSDSA Registration Number: 5307

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ABE Lehigh Valley Area Support Group

Lehigh Valley RSD/CRPS Support group
Meet the first Saturday of Sept, Oct, Nov, Dec, March, April, May, and June, except on holiday weekends, then 2nd Saturday of month. 1:30-3:30 pm.
Location: Sacred Heart Hospital
421 Chew St., Between 4th and 5th, Allentown, PA
Contact: Patti O'Donnell or Sandy Mangini
Mailing Address: PO Box 294, Bethlehem, PA 18016-0294
RSDSA Registration Number: 4821/20114
Tel: 610.776.5992

Allentown-Lehigh Valley

Compassionate Friends Network for RSD/CRPS and Fibromyalgia
To join this free informational and educational network, please e-mail your first and last name, address, and telephone number. This is a confidential list which will only be used to contact you for meetings, events, and mailings.

If anyone would like to volunteer their time to be part of this network, please state in your e-mail.
Contact: Paula Thibault
RSDSA Registration Number: 1491

Camp Hill

Pennsylvania Harrisburg Chapter
Meets every Tuesday of the Month from 1 - 3 pm
Christ Presbyterian Church
421 Deerfield Road, Camp Hill, PA
Contact: Thomas Potter
RSDSA Registration Number: 22649
Tel: 717.503.9255


Lycoming County RSD Support Group
Meets monthly
Divine Providence Hospital, Private dining room in basement)
Contact: A. J. Moyer
16 Carlton St., Canton, PA 17724
RSDSA Registration Number: 1471
Tel: 570.673.5548


Phone Support
Contact: Sheree
RSDSA Registration Number: 17721
Tel: 610-857-5934


Erie EDO/CRPS/Invisible Illness Support Group
Meets 2nd Wednesday of every month starting December 10, 2014 from 7 - 8pm
Hamot Medical Center, UPMC Hamot 201 State Street, Erie, PA
Contact: Elly Thompson
RSDSA Registration Number: 26706
Tel: 814.594.0585

Green Castle

Phone Support Only
Contact: Cindy
RSDSA Registration Number: 17848
Tel: 717-262-8839

Honey Brook

Tri-County Chronic Pain Support Group
71 Wagon Way, Honey Brook, PA
Meets 1st and 3rd Tuesday, 11:00 am to 1:00 pm
Honey Brook Presbyterian Church, Rte. 322, Honey Brook, PA
Contact: Craig Collier
Tel: 610.286.5728
Contact: Georgann Geedey
RSDSA Registration Number: 1656
Tel: 610.273.3163


Meets 3rd Thursday, 6:00 pm to 7:00 pm
Indiana Regional Medical Center, Indiana PA
Contact: Jamie Brown
RSDSA Registration Number: 17013
Tel: 724.599.8341
Contact: Mrs. N.J. King (hospital contact)
Tel: 724.357.8135


Support Group for Complex Regional Pain Syndrome
John P. Murtha Neuroscience and Pain Institute, 1450 Scalp Ave, Johnstown
For meeting times, please call Lori Murphy.
Contact: Vicki Walker
Tel: 814.410.3301
Contact: Lori Murphy
Tel: 814.269.5238


Meets 1st Sunday, 3:00 pm at the Evangelical Community Hospital
Contact: Jenny Dye
RSDSA Registration Number: 1473
Tel: 570.649.5061

Luzerne County

RSD/CRPS Support Group of Luzerne County
Meets 3rd Saturday of each month 1:30 - 3:00 pm. The next meeting is March 21st, weather permitting. Please call for meeting updates.
Danko's All American Fitness in Hand2Hand Therapy, 3 North River Street, Plains, PA
Contact: Tammy Tomchak
RSDSA Registration Number: 28040
Tel: 570.855.0933


Monongahela Valley Support Group of Southwestern PA
Meets 2nd Tuesday from November to March: 11:00 am | April to October: 6:00 pm to 8:00 pm
Monongahela Valley Hospital, Lombardi Conference/ Office Bldg.
Contact: Paulette Anderson
RSDSA Registration Number: 1423
Tel: 724.929.9492

N. Langhorn
This group is just starting
Contact Tess Shore


8-week therapy group for people with chronic pain (fee charged)

New "Coping with Pain: Monthly Support Group
The new group will be held on the first Friday of every month from 11am - 12:15pm. The first three group sessions wil be February 7, March 7, and April 4, 2014. The cost of the group is $60 a session with a sliding scale fee available. To make a reservation or if you have questions, please call Dr. Whitman. For more information please see the attached Flyer.
Contact: Sarah M. Whitman, MD
18 Hilltop Road, Philadelphia, PA 19118
RSDSA Registration Number: 7253
Tel: 267.265.2082


Scranton/Wilkes-Barre PA Support Group
St. Ann's Basilica Parish, the Shrine Room
1250 St. Ann's Street, Scranton, PA.
The Scranton group is meeting there on the 2nd Satuday of each month. No meetings are held in January and February, and we have a dinner out meeting in December (Christmas Party).
New members, family, and friends welcome.
Contact: Suzanne O'Toole
RSDSA Registration Number: 1100
Tel: 570.383.0578 Call anytime)


Montgomery County RSD Support Group
We will be starting meetings in late September-May.
Please contact for resources, support, and information.
Contact: Stephanie Maberry
Tel: 267.888.7599 (anytime)

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Rhode Island


RI RSD Foundation
Contact: Robert Hinton
17 Lemieux Ave, Cumberland, RI 02864
RSDSA Registration Number: 14282
Tel: 401.533.2142 (cell)

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South Carolina


South Carolina RSDS Association
Meets monthly - 1st Thursday
St. Francis Hospital Bernardine Center
Contact: Louise Plaster
RSDSA Registration Number: 1996
PO Box 72, Simpsonville, SC 29681
Tel: 864.967.7965, Cell: 864.350.1342
Robert Schwartz, MD
317 Francis Dr. #350, Greenville, SC
Tel: 864.235.1834

Myrtle Beach

Living with RSD/CRPs Myrtle Beach
We are a face to face support group focusing on LIVING with RSD/CRPS. With over 31 years LIVING with RSD we are here to help. You are never alone. For meeting information please email Keith.
Contact: Keith Voelker
RSDSA Registration Number: 19792
Tel: 843.593.1673


Support group meeting: 3rd Saturday of month, starting at 1:30pm
3785 Blackberry Lane, Lot 7, Sumter, SC 29154
Contact: Donna Parker
RSDSA Registration Number: 12636
Tel: 803.468.7627

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South Dakota


Nina is interested in starting an in-person or online support group
Contact: Nina
RSDSA Registration Number: 25846

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Eastern Tennessee/Loudon

Reflex Sympathetic Dystrophy & Chronic Pain Support Group Of Eastern Tennessee
Meeting at Christ Our Savior Lutheran Church
260 Wade Road, Loudon, TN
Meets Wednesday, 6 pm
Contact: Suzy Holcomb
RSDSA Registration Number: 1951
Tel: 865.657.9052, E-Mail: Suzy

Middle Tennessee and Fort Campbell Kentucky

RSD/CRPS FaceBook Support Group
This is a local group with several non-local support members, family members of survivors, friends of survivors, nurses, doctors, physical therapists and members of other RSD/CRPS groups that can help network and share information regarding the latest treatment in their areas. This is a closed group.
Contact: Omega Ann Kimoto
RSDSA Registration Number: 17355

Middle Tennessee

Middle Tennessee Support Group RSD
Looking to develop a local group for discussions and support, for RSD patients, and well spouses
Contact: Peter and Cherrie Albertson

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Telephone/Email/Texting Support Only
North Texas RSD/CRPS/MS Support Group

Contact: Randy Jarvis
RSDSA Registration Number: 18734
Tel: 817.721.7335, E-mail:


Texas Support for RSD
Monthly Group Meetings / Phone Support / Faith Based Call in Book Club Study
Bringing our family member's together with people just like them in their position. Education of RSD/CRPS. Knowledge is Power! Advocate for yourself with knowledge!
Support is also available on Facebook. The Facebook group is private please call Mandy to join the group.
Contact Mandy Winner
RSDSA Registration Number: 18670
Tel: 512.988.7137

El Paso

Phone Support
Contact: Anna Montoya, RN
7320 Duxbury Dr., El Paso, TX 79912
Tel: 915.833.3668
Fax: 915.845.3011


Please visit us on Facebook
Contact: Denise
Tel: 936.336.0800


Plano RSD Angels - Plano, TX
New Group - Meeting are TBD. If you are interested in attending a support group please contact Jaclyn by e-mail for information.
To join the private Facebook group please e-mail Jaclyn.
Contact: Jaclyn Drexel
RSDSA Registration Number: 22530

Telephone and E-mail Support Only
Contact: Vickie Thoma
RSDSA Registration Number: 4443
Tel: 972.625.8140


Chronic Pain and RSD Support Group
Meeting is the 2nd Monday of each month at the Methodist Richardson Medical Center, 401 W. Campbell Road 4th floor, Richardson, TX in the 4th floor conference room.
Contact: Pamela Terrell
RSDSA Registration Number: 25716
Tel: 972.527.6406

San Antonio

Monthly Meetings
Contact: Contact: Luann
RSDSA Registration Number: 18310
Tel: 210.844.7300

Western Texas

Phone Support
Contact: Anna Montoya, RN
PO Box 203, Santa Teresa, NM 88008
Tel: 915.490.0084 or 505.503.1967
E-mail: or

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There are currently no support groups in Utah.

Check surrounding states for support groups: Arizona, Colorado, Idaho, Nevada, New Mexico, Wyoming

Find an online support group here.

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Northern Vt Rsd/Crps Support Group
Meetings starting Wednesday, May 7 from 6-7 pm
Please contact BilliJo for location and details.
Phone / E-mail Support Only
Contact: BilliJo Ryea
PO Box 1067, Newport, VT 05855
RSDSA Registration Number: 25518
Tel: 802.624.0854

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Washington DC RSD Awareness / Support Group
Meetings are held once a month on the weekend. The day and time will vary. Please contact Lori if you would like to attend a meeting.
Phone / E-mail Support Only
Contact: Lori Nelson
RSDSA Registration Number: 19758
Tel: 703.608.3903


Contact: Erin Dasher for more information on meeting dates and times
RSDSA Registration number: 16952
Tel: 757.634.9162
E-mail: or

Virginia Beach

Friends Living with RSD/CRPS
Meets 3rd Tuesday, 11:00 am to 1:00 pm
Contact: Debbie Holt
Tel: 757.737.1379

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CRPS South Sound Support Group
Meets the last Friday of every month from 3 to 4:30 pm
Tacoma Area Coalition of Individuals with Disabilities (TACID)
6315 19th Street, Tacoma
The group also is on Facebook.
Contact: Rochelle Carlson
RSDSA Registration Number: 26338
Tel: 253.820.7438


Hope 4 Pain
Phone Support Only
Contact: Carol
RSDSA Registration Number: 10191

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West Virginia


Contact: Deb Noble
RSDSA Registration Number: 14567
Tel: 304.641.8092

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CRPS Organization
Meets the 3rd Saturday of each month, starting in August 2014 from 1-3 pm
Location: Elite Sport and Spine, 19575 Janacek Court, Suite 103, Brookfield, WI Contact: Tammy Gorski
RSDSA Registration Number: 26660
Tel: 414.651.4122


RSDS Hope of Wisconsin, Inc., of Greenbay
Meetings will start again in September, more information coming soon.
Contact: Jean Dax
Tel: 920.655.8996


Phone Support Only
If Beverly doesn't answer please leave your telephone number and she will return your call.
Contact: Beverly Kitzke
RSDSA Registration Number: 3363
Tel: 414.421.4536

La Crosse

New Group / Phone Support Only
To help others who have RSD to realize they are not alone and try to have some relief in the pain.
Contact: Kimberly Young
RSDSA Registration Number: 24607
Tel: 608.769.0099


Midwest CRPS Support
Coming Soon, Please visit the website for more information at
Contact: Mia DeFino
RSDSA Registration Number: 20023
Tel: 414.690.9252

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Also, please check surrounding states for support groups: Colorado, Idaho, Montana, Nebraska, South Dakota, Utah. Find an online support group here.

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Puerto Rico

Grupo de apoyo Puerto Rico RSD/CRPS
Contact: Mariamgelis Rivera
(Tel: 787.597.2590, Facebook)
Jeanette Rodriguez (Tel: 787.309.3937, Facebook),, Facebook Group (Grupo de apoyo Puerto Rico RSD/CRPS), Twitter,

Adviser on Public Relations for Patients in Puerto Rico and APF Leader Action Network Puerto Rico helping to promote Awareness. If you want advice, help to be part of a support group, or to create one in your area, contact me.

Contact: Yazmin Michelle, Tel: 787.617.0333,, Facebook Group (Puerto Rico Challenge RSD/CRPS), Twitter, Facebook/Yazmin Michelle, Firstgiving
Volunteer support member of, organization organized by a rheumatologist to help people in pain.



Australian RSD/CRPS Support Group


New support group open to anyone with CRPS or who knows someone with CRPS.

For more information on meetings visit their website:

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